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I am at my wits end and it has nothing to do with this disease. After the scare we had with Tim's gallbladder and his increasing difficulty speaking and swallowing I decided I would arrange for all of his kids, and mine to come for Christmas. I contacted them all and told them that we would...

For those of you who have private insurance as primary and Medicare as secondary, make sure to read your benefits book closely. I have BCBS through my wife's work and just found out today that they will not cover a speech generating device. Buried on page 123 of a 427 page document, it states...

Hello everyone, I want to thank you for reading my post. My mother passed from ALS a few years ago as I am well aware of the personal nature of this devestating, life altering disease. I am not scared. I am not looking to fuel or extinguish my fears. I am only posting to release my concerns...

So Tim had his feeding tube put in 2 years ago as his breathing was deteriorating quickly in spite of the fact that he was still mobile. He had it changed to a low profile Mic Key which was great and just needed to be flushed with water to keep it open. On the odd time that I forgot to give...

Emotions! General counseling does not understand this disease or the people involved.... This is not text book. So I feel I need help from those that truly understand. My PAL/ husband, is very distant most of the time. Sleeping or drinking to pass out, or taking his mess to pass out. He...

>Dear Fellow PALS: I am EXCITED to announce I've finished writing my NEW BOOK! "Align, Lengthen & Strengthen Your Resilience; While Living with ALS" It's filled with humorous anecdotes and practical advice drawn from my background in wellness. I wrote it for anyone facing a life-threatening...

Hello all, I haven't been around in a while. I hope you are all ok - well - as ok as you can be. I was diagnosed 1 year ago June 17th. Seems like a long time ago although only a year. This has been a LONG year for a lot of reasons. Mostly good. I have grown so much emotionally and...

I over heard the children in church as they where working on memorizing the entire book of 1Peter. As I listened to them I had some thoughts about what they where reciting. I thought I would write those thoughts and more down as a brief commentary on the book. 1 Peter 1: 1,2 New King James...

"Blessing" is a word that is thrown around a lot in our society and so I decided some time ago to do a in depth study of the scriptures to try and Biblically understand its meaning. In short what I found is that a blessing is anything that directs us a way from ourselves and to the person and...

This is what's wrong with me, and I bet you all have varying degrees of it as well! Recently, A women was diagnosed with A.A.A.D.D. Age Activated Attention Deficit Disorder. This is how it manifests: I decide to water my flower tubs. As I turn on the hose I look over at my car and...