angry

  1. WendyWooG

    The early hours

    Why is it that the early hours of the morning are so difficult to deal with. I am totally unable to sleep yet again and hitting a real low point. I have tried very hard through happy pills and counselling to find a balance and up until tonight I was doing ok. I have enjoyed my family made some...
  2. K

    Some thoughts

    Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...
    • kay2017
    • Thread
    • age als angry awareness brain breathing bucket challenge death diagnosed equipment fingers heart hope ice ice bucket challenge insurance life lonely medical equipment research stages support technology treatments video wrong
    • Replies: 8
    • Forum: General discussion about ALS/MND
  3. J

    Where we are and Questions

    Hello all, This is my first post, but I have been lurking for a while, soaking up all the information I can process. Let me tell you, I have learned more on this forum than all other venues available, and I thank you all. My husband started with foot drop in 2011, then fasciculations and...
    • Jrzygrl
    • Thread
    • als angry biopsy caregiver clinic disability early equipment fasciculations frustrated insurance minivan mobility motor neuron disease muscle neurologist onset power power wheelchair progression ramp second opinion symptoms tests walker wheelchair
    • Replies: 3
    • Forum: Current caregivers
  4. preacherman

    When is it OK to share?

    This is an issue which seems to guide my life and my decisions, yet one I have so little real strength to really do anything about. To the masses who are without any real solid knowledge of God, those who share the Word are considered to be a complete nuisance. People do not want to be...
  5. S

    Our Terrible Story

    My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context: My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...
    • soakland
    • Thread
    • als angry bed bipolar bulbar caregiver caregiving christian clinic dad diagnosis disability familial father friend grinder hope meals pressure sale slurred speech speech story symptoms treatment wanted worry
    • Replies: 11
    • Forum: Current caregivers
  6. F

    My husband wants to die,

    Dear fellow caregivers, my first online support group post. My spouse was diagnosed with ALS in 2015. We started to notice fasiculations in his upper arms and shoulders. Then he had a couple random falls when walking out in the community. We went to hospital for he did not have a GP. They then...
    • FayRay
    • Thread
    • 2nd opinion als angry back caregivers clinic depressed diagnosed frustrated hope husband ice life meds muscle pain problems scared speech support surgery swallow symptoms symptoms of als wanted
    • Replies: 21
    • Forum: Current caregivers
  7. L

    The universe keeps dishing it out.

    We recognized the first anniversary of Kathy's death on December 20. On january 23, the anniversary of her memorial, my father was admitted to the ER with internal bleeding. It was harrowing, as ER admissions can be. He lost half his blood volume. It's possible he had a stroke at that time. My...
    • Loverly
    • Thread
    • angry brother clothing dad death decline father health legacy life lonely memorial money sad stroke support work
    • Replies: 8
    • Forum: Past caregivers
  8. KatieNBoyd

    Anyone else finding stuff

    So, has anyone else had the "pleasure" (sarcasm) of finding things, notes, letter, photos, emails, and the likes while clearing out stuff. No I am not talking about High School stuff I am talking about things during your marriage/togetherness. Yep, such fun, (sarcasm again!) I feel like i...
  9. L

    out of the shadows

    In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
    • lilac
    • Thread
    • ache als angry anxiety bipap breathing diagnosed falling family family member fear night pneumonia risk scared shortness of breath sleep speech sporadic support swallowing voice walker wheelchair worry
    • Replies: 19
    • Forum: Current caregivers
  10. robynp

    Caregiver/husband

    My husband seems unable to grasp the concept of my limitations. He has not read any of the materials about ALS. He can see my exhaustion, can see my limp, can see my dropped foot prosthetic, can see that I use a rollater walker, can see me lagging behind him 10 ft when he walks. Case in...
Back
Top