ability

  1. B

    Advice needed from community. Medical mystery

    Hi all, https://www.alsforums.com/forum/do-i-have-als-als/41467-clean-clinical-exam-now-gait-abnormality.html Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...
    • BeachBum
    • Thread
    • ability advice afo atrophy ball clinical cold emg family hip life mnd mri muscle pma problem progression questions scared story symptoms testing twitching weakness wrong
    • Replies: 24
    • Forum: Could this be ALS?
  2. B

    Knee-Ankle-Foot (KAFO) Orthotics

    Has anyone out there been prescribed these? If so, what is or has been your experience with them? Do they help or are they too cumbersome? I currently have AFOs, but the therapist says I should consider the KAFOs due to weakness/instability in my upper legs.
  3. H

    Concerned about continued symptoms

    Thank you to all of you who monitor this forum and take the time and energy to respond to all of the guests with a million questions. I truly appreciate you listening and weighing in. It’s been a tough three months for me with lots of varying symptoms ranging from neck pain to brief low grade...
    • Heireg35
    • Thread
    • ability als anxiety back brain clinical concerned early fasciculations flu lyme magnesium mri muscle muscle weakness muscles neck pain neurologist pain questions symptom symptoms tests twitching vitamin d weakness
    • Replies: 3
    • Forum: Could this be ALS?
  4. A

    Healthy Anxiety - Thank You

    Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...
    • Atw221
    • Thread
    • ability als anxiety back bed death diagnosed dying health heart helpful lift muscle problem reading twitches twitching wanted worry wrong
    • Replies: 4
    • Forum: Could this be ALS?
  5. swalker

    Time for a new wheelchair

    As many of you know, I have 4 wheelchairs, one of which has been funded by private insurance. The other three we bought used for particular purposes. The wheelchair funded by insurance is a Permobil C500s VS, which was ordered 4 years ago this month and arrived in January of 2015. It has over...
  6. M

    Seeking Orlando Neuro

    Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now. My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers. 7 months ago...
    • melab
    • Thread
    • 2nd opinion ability als autoimmune back chair clinic crying denervation driving emg fingers food foot hours insurance lift night onset shoulder symptoms test twitching weakness young
    • Replies: 4
    • Forum: Could this be ALS?
  7. G

    After months of lurking, I'm officially here

    I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...
    • Grandma D
    • Thread
    • ability atrophy back baclofen bed bulbar clinic emg finger hope knee pain muscle muscle wasting pain riluzole slurred speech speech supplement swallowing symptoms tongue tongue atrophy wanted weakness
    • Replies: 11
    • Forum: Newly diagnosed
  8. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
    • BlsdMama
    • Thread
    • ability als arm back balance clinic cramping emg foot ice improvement movement neurologist onset pls progression questions story treatments trial voice wanted weakness
    • Replies: 2
    • Forum: Primary lateral sclerosis
  9. J

    Denver, CO improves ALS symptoms?

    Hi, I recently came back to NJ from a four-day trip to Denver, CO. While I was there, several of my symptoms had improved noticeably. My ability to swallow water had improved back to the pre ALS levels; the back of my knees which are usually the stiffest part, softened up and made my walking...
  10. A

    Bulbar onset PLS: how long before speech is gone?

    My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for...
Back
Top