Kristina1
Senior member
- Joined
- Jan 26, 2017
- Messages
- 822
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- MA
- City
- Grafton
I was having a great morning with my husband, when we stopped at the pharmacy to pick up a prescription for my daughter. The pharmacist came all the way out of their area to come over and touch my arm and ask me how I'm doing. She looked like she felt so bad for me. I have never mentioned my diagnosis at my pharmacy but obviously they figured it out from the riluzole they've been specially ordering for me every month. I know she meant well but it took me from enjoying my day and feeling normal to remembering that I'm sick with a fatal disease.
I feel like these unwelcome intrusions come all the time from everyone. Even, like in this case, people I don't know well and who I never told about my diagnosis. Sometimes I want to go along on an errand with my husband just to get out of the house, but I realize that if I do I will have to answer "how are you feeling?/ is there anything we can do..?" questions and it just takes the wind out of my sails and I decide to stay home instead.
Does anyone else feel this way? I'm pretty open online but in real life I'm a very private person and somewhat introverted and it is intensely uncomfortable for me to handle this constant social focus on my situation.
I feel like these unwelcome intrusions come all the time from everyone. Even, like in this case, people I don't know well and who I never told about my diagnosis. Sometimes I want to go along on an errand with my husband just to get out of the house, but I realize that if I do I will have to answer "how are you feeling?/ is there anything we can do..?" questions and it just takes the wind out of my sails and I decide to stay home instead.
Does anyone else feel this way? I'm pretty open online but in real life I'm a very private person and somewhat introverted and it is intensely uncomfortable for me to handle this constant social focus on my situation.