On Saturday I was denied SSI w/Medicaid

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stumble

Active member
Joined
Jun 8, 2014
Messages
57
Reason
PALS
Diagnosis
04/2014
Country
US
State
Minnestota
City
Woodbury
I thought ALS was a sure way to get into Social Security. But after 66 days I was denied because I didn't call for an interview. I got rid of my phone when I discovered I was never going to talk anymore. They never emailed me. When are SSI people going to realize that ALS people can't do things everyday people can do. And when are they going to realize that ALS is on the magic in list?
 
You might have to get a ssi lawyer. They'll get part of your back pay but sometimes it's the only way to get things done. Had a lawyer from the start on it told me that SSDI automatically denies about 90 percent of applications first time around and that you have to appeal, was fortunate that mine went through the first time
 
stumble, apparently you must live by yourself > "I got rid of my phone when I discovered I was never going to talk anymore." But, maybe you have a relative or friend who has a phone that could relay the interview. You have a computer so try on line contact explaining your circumstance. Social Security, when it comes to ALS, is very helpful and accommodating but they need to know your circumstances first. Try again.
 
I would go into the local office if at all possible. be sure to take all your paperwork and doctor info ect. with you. on line you can find all the info you will need to have with you. Get the top person at the local office to sit with you and go over it all.
 
I'm not sure why you were denied. I applied on-line, called the ALS clinic to inform them paper work was on the way. Everything went fine. No interview was needed. It must vary state to state. Don't give up.......

Debbie
 
I think the rules are different for SSI and SSDI. For SSI even though ALS is TERI illness I believe an interview is required. You can appoint a rep if you can not do it. But now believe you must appeal within 60 days. If you can, go to SS office and communicate inerson. Or send a rep
 
ask alsa or mda for guidance and/or help!
 
we went into the office with an appointment and took care of everything, no problems.
 
Stumble, is Leesburg your closest office? have someone call and make an appointment and go with you as well. take a letter from your doctor with your diagnosis.
 
Definitely try again, have someone call for you.
 
It is considered a compassionate approval. Knowing you have it they will approve without an attorney. You will need to follow their steps though even the interview. Assign someone to help you such as family or friend.
 
If your claim is for Supplementary Security Income (SSI) benefits for disability or blindness, we may make PD or PB payments for up to 6 months while you are waiting for the Disability Determination Services (DDS) to make a final decision. Our decision to grant PD or PB payments is based on the severity of your condition and the likelihood that your claim will be ultimately approved, not on your financial need.

NOTE We will base the amount of these payments on your countable income. See our chapter on SSI INCOME for an explanation of countable income.

You may be eligible to receive SSI benefits right away on the basis of a PD or PB determination if you have one or more of the following medical conditions:

amputation of a leg at the hip;

allegation of total deafness; that is, no sound perception in either ear;

allegation of total blindness; that is, no light perception in either eye;

allegation of bed confinement and immobility without a wheelchair, walker, or crutches, due to a longstanding condition excluding recent accident and recent surgery;

allegation of stroke (cerebral vascular accident) more than three months in the past and continued marked difficulty in walking or using a hand or arm;

allegation of cerebral palsy, muscular dystrophy, or muscular atrophy and marked difficulty in walking (for example the use of braces), speaking, or coordination of the hands or arms;

allegation of Down syndrome;

allegation of severe mental deficiency made by another individual filing on behalf of a claimant who is at least 7 years of age;

a child has not reached his or her first birthday and the birth certificate or other medical evidence shows a weight below 1,200 grams (2 pounds, 10 ounces) at birth:

a child has not attained his or her first birthday and available medical evidence shows a gestational age (GA) at birth with these corresponding birth-weights:

- GA: 37-40 weeks; weight at birth: less than 2000 grams (4 pounds, 6 ounces);
- GA: 36 weeks; weight at birth; 1875 grams (4 pounds, 2 ounces) or less;
- GA: 35 weeks; weight at birth: 1700 grams (3 pounds, 12 ounces) or less;
- GA: 34 weeks; weight at birth: 1500 grams (3 pounds, 5 ounces) or less; or
- GA: 33 weeks; weight at birth: at least 1200 grams, but no more than 1325 grams (2 pounds, 15 ounces);
symptomatic human immunodeficiency virus (HIV) infection or acquired immunodeficiency syndrome (AIDS); Form SSA-4814 or SSA-4815 is needed;

a physician confirms by telephone or in a signed statement that an individual has a terminal illness with a life expectancy of six months or less; or a physician or knowledgeable hospice official (for example, hospice coordinator, staff nurse, social worker or medical records custodian) confirms that an individual is receiving hospice services because of a terminal illness;

allegation of a spinal cord injury producing an inability to ambulate without the use of a walker or bilateral hand–held assistive devices for more than two weeks with confirmation of such status from an appropriate medical professional;

end stage renal disease (ESRD) requiring chronic dialysis, and the file contains a completed CMS–2728-U3 End Stage Renal Disease Medical Evidence Report–Medicare Entitlement and/or Patient Registration;

allegation of amyotrophic lateral sclerosis (ALS) known as Lou Gehrig's disease
 
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