Anastasia
Active member
- Joined
- Sep 4, 2009
- Messages
- 84
- Diagnosis
- 04/2008
- Country
- AUS
- State
- South Australia
- City
- Adelaide
Hi all,
just thought I d throw this in and see what peoole think.
Ed was diagnosed in July 09, and we were told he had PBP.
Now his specialist is sitting on the fence and not prepared to say it is that and is happier to go with the general diagnoses of MND.
By all accounts the symptoms Ed first presented with such as speech problems, some balance issues,trouble with his jaw and facial ticks first thing in the morning usually,
seemed to varify the first diagnoses.
Why would the specialist decide to sit on the fence and is he perhaps really totally unsure?
The illness is still with us of course, but we have the feeling that perhaps knowing at least vaguely which parts of Eds body will next be affected,was a help.
Maybe we dont need to know,maybe its irrelevant.
What do people think?
Have others had similar experiences?
We d be happy to have your thoughts.
Cheers,Anastasia.
just thought I d throw this in and see what peoole think.
Ed was diagnosed in July 09, and we were told he had PBP.
Now his specialist is sitting on the fence and not prepared to say it is that and is happier to go with the general diagnoses of MND.
By all accounts the symptoms Ed first presented with such as speech problems, some balance issues,trouble with his jaw and facial ticks first thing in the morning usually,
seemed to varify the first diagnoses.
Why would the specialist decide to sit on the fence and is he perhaps really totally unsure?
The illness is still with us of course, but we have the feeling that perhaps knowing at least vaguely which parts of Eds body will next be affected,was a help.
Maybe we dont need to know,maybe its irrelevant.
What do people think?
Have others had similar experiences?
We d be happy to have your thoughts.
Cheers,Anastasia.