Old 05-12-2017, 01:47 AM #1 (permalink)
New Member
Join Date: 2013
City: Orlando
State: FLorida
Country: US
Interest: Other
Posts: 92
help1127 is on a distinguished road
help1127 help1127 is offline
New Member
Join Date: 2013
City: Orlando
State: FLorida
Country: US
Interest: Other
Posts: 92
help1127 is on a distinguished road
Default Congenital or heriditary motor neuropathy


Would during if anyone has been told that they probably have a (congenital or heriditary motor neuropathy)?

After 4 years of seeing doctors my ALS specialists did an emg and said he believes in have a congenital or heriditary motor neuropathy and that in some of the cases clonus is seen. Last week's emg showed abnormalities in my to calves but nothing anywhere else. My NCS was perfect, my doctor said the combination of the 2 points to a motor neuropathy. He said I definitely don't have ALS and this will not become ALS.

The issue I have is that if that's the case shouldn't I have diminished reflexes, no clonus, and no hoffman?

I just thought someone here that has gone through the same situation can shed some light based on their experience.

Thank you
help1127 is offline  
Closed Thread

als, clonus, emg

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
IVIG and multifocal motor neuropathy HeatherFeather People With ALS - "PALS" 8 02-07-2015 11:17 AM
MND Multifocal Motor Neuropathy (MMN) Peg B General Discussion About MMN 13 05-01-2009 10:07 PM
Can Motor Neuropathy ...... Kewanee General Discussion About MMN 2 09-23-2008 01:45 PM
Multifocal Motor Neuropathy juliesmile General Discussion About MMN 36 08-07-2008 10:37 PM
MND Multifocal Motor Neuropathy (MMN) Peg B People With ALS - "PALS" 4 02-24-2007 11:06 PM

All times are GMT -5. The time now is 07:50 PM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016