Andersk2
Member
- Joined
- Apr 4, 2016
- Messages
- 27
- Reason
- DX MND
- Diagnosis
- 04/2016
- Country
- Us
- State
- Oh
- City
- East Ohio
I have been newly diagnosed as "Possible ALS" by my Neurologist and Primary physician following a whole series of testing. Most of which I didn't even understand. I actually was seeing the Neurologist for a seizure disorder when we discovered the muscle fasciculations slowed EMG waves and Hypflexia. I had marked clinical weakness for about two years that every one thought was due to the seizure activity and we were looking for MS or Thyroid disease. However, Within 3 months, left handed atrophy and foot drop set in. I'm now awaiting my appointment to the neuro-muscular clinic at OSU. I have taken the precautionary insurance steps, etc.
Here is my question on atrophy. My Dr. Advised me to write down any new signs and keep track. I'm really not completely sure what I'm looking for. So, I check for changes in sizes, shape, new lines or dimples in muscles that I didn't see before. What I have noticed, is in the ares where the limbs are getting progressively weaker, the skin is not as tight, and the muscles feel "bumpy". Is that atrophy? Or just sore muscle? I make it a point to stretch and do some type of excecise daily to try to keep what muscles I have left strong. But I know in comparing one side to the other, there is a difference. I'm just not sure if it is related to atrophy or not. Given that my medical team and my husband are the only people that know, I do not have a whole lot of people to ask.
Here is my question on atrophy. My Dr. Advised me to write down any new signs and keep track. I'm really not completely sure what I'm looking for. So, I check for changes in sizes, shape, new lines or dimples in muscles that I didn't see before. What I have noticed, is in the ares where the limbs are getting progressively weaker, the skin is not as tight, and the muscles feel "bumpy". Is that atrophy? Or just sore muscle? I make it a point to stretch and do some type of excecise daily to try to keep what muscles I have left strong. But I know in comparing one side to the other, there is a difference. I'm just not sure if it is related to atrophy or not. Given that my medical team and my husband are the only people that know, I do not have a whole lot of people to ask.