- Joined
- Aug 28, 2013
- Messages
- 2,873
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
May I gently remind all. Funding, research and pharmaceutical companies all look at numbers for the biggest bang for their buck. In one’s vigor to lecture and remind people ALS the rare of rarity you may not be doing yourself a favor. I am not suggesting the world needs more ALS. I believe ALS is becoming more common than currently considered. There is an unexplainable increasing number of Veterans being diagnosed with ALS. Years ago Alzheimers Disease was considered rare. Not any more. (Just recently "Inventor" made a post indicating that a long held belief that sensory involvement ruled out ALS but now that belief may fall too.)
Finally, an EMG does not indicate ALS. It indicates abnormalities and there are about 20 forks in the road that can go down. A neurologist telling you are “possible” or “probable” for ALS is not a confirmed diagnosis of ALS. There are about 5 forks in that road it may still go down. And, as I was reminded… being referred to an ALS Clinic does not mean you have ALS. I’ve been held to task for accuracy so let’s also be accurate to those who claim to be diagnosed with ALS.
But, that’s really a matter of honesty within one’s self… being that no proof is required
Ok, rip it up. I've got thick skin and I admit when I'm wrong. Have at it.
Finally, an EMG does not indicate ALS. It indicates abnormalities and there are about 20 forks in the road that can go down. A neurologist telling you are “possible” or “probable” for ALS is not a confirmed diagnosis of ALS. There are about 5 forks in that road it may still go down. And, as I was reminded… being referred to an ALS Clinic does not mean you have ALS. I’ve been held to task for accuracy so let’s also be accurate to those who claim to be diagnosed with ALS.
But, that’s really a matter of honesty within one’s self… being that no proof is required
Ok, rip it up. I've got thick skin and I admit when I'm wrong. Have at it.