Old 04-24-2013, 05:16 AM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2013
City: St Laurent de Bdt
State: Normandie
Country: FR
Interest: I am a family member of someone with ALS/MND.
Posts: 1
Charlutte is on a distinguished road
Charlutte Charlutte is offline
New Member (Say Hi)
Join Date: 2013
City: St Laurent de Bdt
State: Normandie
Country: FR
Interest: I am a family member of someone with ALS/MND.
Posts: 1
Charlutte is on a distinguished road
Default Cell stem treatment in Hadassah feedback needed!

Hi all,

My dad has been diagnosed with ALS three years ago. He is now in a wheelchair; We have heard about the cell stem treatment in Hadassah and Switzerland. It represents a big hope for our family and I am sure for everyone who has ALS.

There is very few information and feedback from patients who have received the treatment and I was wondering if anyone went to Hadassah and Switzerland, could they please share their experience? Is it possible for soene in wheelchair? Is it difficult? Are there any side effects? Have you experience any stabilization or improvement of your condition?

It is important for us to have feedback from poeple who have done it as it would help a lot to make a decision. Time goes and the disease is evolving...

I look forward to your reply,

Charlutte
Charlutte is offline  
Old 04-24-2013, 01:35 PM #2 (permalink)
New Member
 
Join Date: 2012
City: Waldwick
State: NJ
Country: US
Diagnosed: 06/2012
Interest: I have been diagnosed with ALS.
Posts: 63
jpsteeler99 is on a distinguished road
jpsteeler99 jpsteeler99 is offline
New Member
Join Date: 2012
City: Waldwick
State: NJ
Country: US
Diagnosed: 06/2012
Interest: I have been diagnosed with ALS.
Posts: 63
jpsteeler99 is on a distinguished road
Default Re: Cell stem treatment in Hadassah feedback needed!

Stem cell treatment to the general public is 5-10 years out if it passes through the FDA and is proven effective. The trials going on now will most likely exclude PALS that are not ambulatory. There are rumors the trial in Israel boasted better results than they actually had. One patient did see major improvements and another here in the US also saw improvements. Problem being is that we need to see more than 1 person improving or the FDA may knock it down. This looks to be promising as a treatment for ALS but not a cure.
jpsteeler99 is offline  
Closed Thread

Tags
als, cell, dad, diagnosed, family, hope, improvement, information, treatment, wheelchair


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
GoFundMe for stem cell treatment!? GregK Other 2 04-05-2015 02:56 PM
Stem Cell Treatment kaumy2 General Discussion About ALS/MND 43 05-23-2014 02:00 PM
Cell Medicine/Medistem ALS stem cell treatment reporterrob ALS Research News 2 11-23-2010 07:12 AM
stem cell treatment for ALS? lovelovelove General Discussion About ALS/MND 5 03-03-2009 02:39 PM
Stem Cell Treatment raob123 General Discussion About PLS 2 05-30-2008 11:25 PM
Stem cell treatment? mamaoftwo General Discussion About ALS/MND 11 01-28-2008 10:47 AM
stem cell treatment? swmn ALS Research News 16 07-16-2007 01:51 PM
Stem cell treatment clark evenchik General Discussion About ALS/MND 10 07-01-2007 09:27 PM
stem cell treatment stanly General Discussion About ALS/MND 1 02-02-2005 09:50 PM
stem cell treatment Jane General Discussion About ALS/MND 10 02-16-2004 08:53 PM


All times are GMT -5. The time now is 02:35 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016