- Status
momap53
Very helpful member
- Joined
- Jul 2, 2011
- Messages
- 1,663
- Reason
- PALS
- Diagnosis
- 05/2011
- Country
- US
- State
- GA
- City
- EGA
I started with a couple of hours during the day while reading or watching TV, then naps, and now wear it all night. Work with your RT to get a mask with a good fit so that you're comfortable.
I'm using a wireless doorbell to call my CALS for assistance.
I'm using a wireless doorbell to call my CALS for assistance.
notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
I used mine while watching TV and in the evenings til I got used to it, too. Try different masks til you find on that is comfortable for you. I love the SleepWeaver mask.
BrianD
Distinguished member
- Joined
- Sep 15, 2009
- Messages
- 415
- Reason
- PALS
- Diagnosis
- 08/2009
- Country
- US
- State
- Colorado
- City
- Colorado Springs
I had to turn down the pressure to start and then build it up a little over time until I got to the prescribed settings. That allowed me to get used to the feeling of the mask all night and the general feeling of the bilevel pressure switches. Also I found the AVAPS mode much more comfortable.
ladyrider
Active member
- Joined
- Jun 7, 2011
- Messages
- 34
- Reason
- PALS
- Diagnosis
- 05/2011
- Country
- US
- State
- Tennessee
- City
- Winchester
thanks for the input. i had 2 meltdowns just before i got it today. i tried for hour this evening, i survived. only hope i can tolerate tonite at bedtime. maybe a couple of hours. my mom used 1 for several years before she passed in 05 from enphezema she was a strong i wish i had half the courage she had.
notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
There are various masks--if this one is bad, have them try ones that aren't so 'closed'. They make one that's a nasal pillow, the sleepweaver I told you about...some that are full face, and some that just cover the nose with a chin strap.
Be sure to ask about the ramp setting, so it goes up gradually--that worked better for me, at least. As long as your mouth isn't covered, hopefully you won't panic with it--but see about a way to have a bell or something attached so if you move your head and need it off, your CAL will hear?
You may find that laying with your head up a little bit will help, too.
Be sure to ask about the ramp setting, so it goes up gradually--that worked better for me, at least. As long as your mouth isn't covered, hopefully you won't panic with it--but see about a way to have a bell or something attached so if you move your head and need it off, your CAL will hear?
You may find that laying with your head up a little bit will help, too.
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