Malissa57
New member
- Joined
- May 17, 2011
- Messages
- 8
- Reason
- Loved one DX
- Diagnosis
- 05/2011
- Country
- US
- State
- IL
- City
- Plainfield
Hello ALS forum users. Yesterday my brother was diagnosed with ALS, a diagnosis that has left us in shock and heartbroken. In the matter of 6 months he's gone from normal to walking with a cane. His symptoms started as leg twitches and pain in his extremities. Eventually the pain traveled upwards to his neck. His legs are the worst at the moment.
In our disbelief, my family has been flooding the internet seeking information. We've read about misdiagnosis and although we doubt that is the issue in this case, I want to know if these beginning are similiar to others. I also read that a person's life expectancy is unknown but I still need to know what we are up against. In our opinion, his condition is moving rather quickly. I could read and read and read some more but I need answers from people who know.
Also, my brother is the oldest of 5 and I am the youngest. I was diagnosed with two very rare blood diseases 25 years ago (Aplastic Anemia and Paraxsysmal Nocturnal Hemoglobinuria). Both diseases are auto immune issues. Is ALS? My brother would of been my bone marrow match had I needed on. I just find that fact interesting.
I live in the Chicagoland area. If anyone knows of any support groups, walks or events in my are, please advise.
Health, wealth, happiness, hope peace, love,
Malissa
In our disbelief, my family has been flooding the internet seeking information. We've read about misdiagnosis and although we doubt that is the issue in this case, I want to know if these beginning are similiar to others. I also read that a person's life expectancy is unknown but I still need to know what we are up against. In our opinion, his condition is moving rather quickly. I could read and read and read some more but I need answers from people who know.
Also, my brother is the oldest of 5 and I am the youngest. I was diagnosed with two very rare blood diseases 25 years ago (Aplastic Anemia and Paraxsysmal Nocturnal Hemoglobinuria). Both diseases are auto immune issues. Is ALS? My brother would of been my bone marrow match had I needed on. I just find that fact interesting.
I live in the Chicagoland area. If anyone knows of any support groups, walks or events in my are, please advise.
Health, wealth, happiness, hope peace, love,
Malissa