rosales20
Active member
- Joined
- Feb 27, 2006
- Messages
- 33
- Country
- US
- State
- CA
- City
- Whittier
Hello,
My name is Manuel Rosales. Sadly, my brother Douglas Rosales died of ALS two years ago. He was diagnosed at 26 and died at 32. Of course, the idea that I might have this dreaded disease always lingered in my mind.
About eight years ago I noticed some twitching on my left or right triceps. I can't remember exactly which one. I sort of panicked, but I did not seek any medical help. For the the next few years I had very little twitching. In 2006, I was seen by a neurologist. He basically told me that I was crazy and that everything was in my mind. He did a nerve conductivity test and some blood work. Everything was fine.
However, for the last two or three years the twitching has greatly accelerated. I have never had any atrophy until now. The muscles around my ankles and shins are smaller and by buttocks are smaller. Also, I never had tongue twitching until now. The twitching used to only take place in one area at a time. Now, multiple areas twitch. I am slurring my speech a little. I also get cramps on my calves. Overall, I have weakness in all my limbs.
Naturally, my wife is in denial and thinks that I am crazy because I still have a lot of muscle and look better than most. This is because I used to be a gym rat. However, I have not worked out in 4 months.
I was seen my the same neurologist about a month ago. He ran another nerve conductivity test and it was ok. However, he did tell me that I tested positive for an antibody. I tested positive for the GD1A antibody.:shock: I had several results for Guillain-Barré syndrome after searching the net. I honestly hope that I have this. Of course, I hope that nothing is wrong at all.
Is it possible to have symptoms for this long and not be diagnosed? I did three sets of 15 push ups yesterday. I can still talk well and run.
I am just really confused, frustrated, and frankly, scared. My neuro requested for me to go see a specialist. I will most likely go to USC or Irvine (California).
Can anyone lend some advice? Has anyone else tested positive for the GD1A antibody? Has anyone been to see Dr. Mozaffar in Irvine, CA?
Thanks
My name is Manuel Rosales. Sadly, my brother Douglas Rosales died of ALS two years ago. He was diagnosed at 26 and died at 32. Of course, the idea that I might have this dreaded disease always lingered in my mind.
About eight years ago I noticed some twitching on my left or right triceps. I can't remember exactly which one. I sort of panicked, but I did not seek any medical help. For the the next few years I had very little twitching. In 2006, I was seen by a neurologist. He basically told me that I was crazy and that everything was in my mind. He did a nerve conductivity test and some blood work. Everything was fine.
However, for the last two or three years the twitching has greatly accelerated. I have never had any atrophy until now. The muscles around my ankles and shins are smaller and by buttocks are smaller. Also, I never had tongue twitching until now. The twitching used to only take place in one area at a time. Now, multiple areas twitch. I am slurring my speech a little. I also get cramps on my calves. Overall, I have weakness in all my limbs.
Naturally, my wife is in denial and thinks that I am crazy because I still have a lot of muscle and look better than most. This is because I used to be a gym rat. However, I have not worked out in 4 months.
I was seen my the same neurologist about a month ago. He ran another nerve conductivity test and it was ok. However, he did tell me that I tested positive for an antibody. I tested positive for the GD1A antibody.:shock: I had several results for Guillain-Barré syndrome after searching the net. I honestly hope that I have this. Of course, I hope that nothing is wrong at all.
Is it possible to have symptoms for this long and not be diagnosed? I did three sets of 15 push ups yesterday. I can still talk well and run.
I am just really confused, frustrated, and frankly, scared. My neuro requested for me to go see a specialist. I will most likely go to USC or Irvine (California).
Can anyone lend some advice? Has anyone else tested positive for the GD1A antibody? Has anyone been to see Dr. Mozaffar in Irvine, CA?
Thanks
