Worried Wife
New member
- Joined
- Jul 24, 2009
- Messages
- 4
- Diagnosis
- 07/2009
- Country
- CA
- State
- California
- City
- Brentwood
Hello!
Several months ago my husband's thumbs began twitching, I discounted the twitching due to the fact that he has a very stressful job. A few months later, his toes began twitching and we felt it was time for him to see a neurologist.
At the time of his first visit to the neurologist, she asked him to keep track of his twitching; Jay never did being that his hands and feet were twitching all the time. Two weeks ago, he had a follow up appointment, where he had some sort of nerve test, the neurologist told him 'he had some abnormalities in his spinal cord and right side of his body' and proceeded to order an MRI and an arsenal of lab work. At the time, Jay asked the doc if she had any suspicion of what it could be and she said, 'ALS.'
Wednesday, Jay returned to the neuro to go over the results of the MRI and lab. MRI was clean, the lab showed his B6 levels to be high, 63.9 where the norm should be somewhere between 5.0-30.0. His homocysteine levels were high also, 17, where the norm should be between 4-13. He was ordered to take 1 gram of folic acid to lower the homocysteine and to lower his vitamin B6.
Now, I have looked everywhere on the Internet for info on how to lower B6 levels, but found nothing. Further more, just about everything has B6 in it, so how do I go about helping him lower the count?
While at the appointment, I flat out asked the neuro if we should still be concerned with ALS, she said, ‘no; however, I still want you to keep an eye on the ‘fat’ between his thumb and pointer finger, if you notice a change, come in asap.’ If she was no longer concerned with ALS, why should we be watching out for this?
Jay is due to return to her office, for a follow up lab in four months, IF his B6 levels have not dropped by then, further testing will be ordered.
I read somewhere on the Internet that high level B6 could be related to ALS. Is there any truth to that?
Also, I should note that after Jay’s meeting with the neuro last week, his twitching got worse. I happened to be on a business trip, when I returned, his twitching has gotten better, in fact, I don’t think he has had any twitching since Tuesday, when I arrived.
I just don’t know what to think anymore? I’m scared for him and for our family. I’ve been perusing the Internet looking for other causes that can lead to high B6 levels, but I can’t seem to find anything.
I don’t even know if I’ve given you a clear picture of what’s happening, my apologies in advance but I am very nervous and scared.
Based on what I’ve written what do you think Jay ought to do? How can he go about reducing his B6 count? Should he seek further testing, if so, which one’s? Should he see another doctor?
Any help would be greatly appreciated.
Many thanks in advance.
ASN
Several months ago my husband's thumbs began twitching, I discounted the twitching due to the fact that he has a very stressful job. A few months later, his toes began twitching and we felt it was time for him to see a neurologist.
At the time of his first visit to the neurologist, she asked him to keep track of his twitching; Jay never did being that his hands and feet were twitching all the time. Two weeks ago, he had a follow up appointment, where he had some sort of nerve test, the neurologist told him 'he had some abnormalities in his spinal cord and right side of his body' and proceeded to order an MRI and an arsenal of lab work. At the time, Jay asked the doc if she had any suspicion of what it could be and she said, 'ALS.'
Wednesday, Jay returned to the neuro to go over the results of the MRI and lab. MRI was clean, the lab showed his B6 levels to be high, 63.9 where the norm should be somewhere between 5.0-30.0. His homocysteine levels were high also, 17, where the norm should be between 4-13. He was ordered to take 1 gram of folic acid to lower the homocysteine and to lower his vitamin B6.
Now, I have looked everywhere on the Internet for info on how to lower B6 levels, but found nothing. Further more, just about everything has B6 in it, so how do I go about helping him lower the count?
While at the appointment, I flat out asked the neuro if we should still be concerned with ALS, she said, ‘no; however, I still want you to keep an eye on the ‘fat’ between his thumb and pointer finger, if you notice a change, come in asap.’ If she was no longer concerned with ALS, why should we be watching out for this?
Jay is due to return to her office, for a follow up lab in four months, IF his B6 levels have not dropped by then, further testing will be ordered.
I read somewhere on the Internet that high level B6 could be related to ALS. Is there any truth to that?
Also, I should note that after Jay’s meeting with the neuro last week, his twitching got worse. I happened to be on a business trip, when I returned, his twitching has gotten better, in fact, I don’t think he has had any twitching since Tuesday, when I arrived.
I just don’t know what to think anymore? I’m scared for him and for our family. I’ve been perusing the Internet looking for other causes that can lead to high B6 levels, but I can’t seem to find anything.
I don’t even know if I’ve given you a clear picture of what’s happening, my apologies in advance but I am very nervous and scared.
Based on what I’ve written what do you think Jay ought to do? How can he go about reducing his B6 count? Should he seek further testing, if so, which one’s? Should he see another doctor?
Any help would be greatly appreciated.
Many thanks in advance.
ASN
