JackRules88
New member
- Joined
- Dec 24, 2008
- Messages
- 4
- Reason
- Other
- Country
- US
- State
- Illinois
- City
- Downers Grove
Hey all, I’m 20 and irritated with my problems, I’m sure you have heard of these bios before so I’ll keep it short but here’s mine…
At the beginning of this year I began noticing a tremor in my right arm. I originally thought it was nothing because it would happen when I wake up at night. It progressively got worse along with intense eye pain, headaches, and dizziness. I went to a doc and was told I was having nose infection. (Which I knew I didn’t, because I knew what those felt like but just accepted the diagnosed)
Went to an eye doc, said my eyes were perfectly fine. All was well…kinda.
Since the beginning of the year my symptoms have not gone away. I suffer through everything nervous system related. I ended up seeing an ear, nose, throat doc after my problems did not go away. He ended up saying that it was panic attacks. (This will be a reoccurring theme) But I told him I wanted an MRI and he gave it to me.
I take the MRI (brain) to a Nero Doc, and at this point in time, he figured it was stress. So he gave me super powerful stress meds, no help. Came back, gave me even stronger meds, no luck. Came back one more time for good measure, the Doc decided to give it one more shot and give me the strongest meds he had. No luck. So now I haven’t seen the Doc in a couple months fearing what may happen next time I show. Oh, MRI was fine.
- What scares me the most now is that I still can walk normally but, my left leg seems jammed or weighted. It’s like it doesn’t want to help my right leg walk. I’ve noticed myself kind of tip sideways at times but always reposition my feet to find balance before a fall.
As of now...
- Any part of my body will twitch constantly, mostly though on my neck, face and legs. I will twitch a lot on the bottom of my feet too. About a month ago my legs developed a terrible muscle pain. Mostly on my legs and thighs. Especially on my left leg. Twitching recently has gotten really bad with-in the last month.
- My fingers will feel tingly and sometimes will become very painful, like someone stabbing a nail in my fingers. At times this will happen with my toes. My lips and mouth also feel tingly. When this happens to the side of my mouth my face feels like it’s sagging.
- My body will itch at times during the day.
- At times I have a tough time swallowing, and my neck feels stiff, like a real tight rubber band.
- Every night, before sleep, right on schedule, all these symptoms will come to life. Twitching and moving taking over my body for awhile.
- The most annoying thing at night is that I have uncontrolled body movements, mostly with my neck and head. I also have these terrible flashing lights with my eyes that occur with the slightest noise or sound.
For months I figured ALS would be so rare for a twenty year old to obtain. (Or so I’m told) Now though, I feel that I’m running out of options before I hear the DX that I’m completely dreading. Another problem that I’m encountering is that Docs has said its stress so many times, that my entire family has taken up the talking points. Thinking like I’m nuts. You know what stresses me out though? Being told I’m too stress…
I left out some details but I figure you get the jest of things.
Couple of questions…
I will see the nero Jan 5, and was wondering is there anything I should ask the Doc specifically relating to Als/Mnd.
Does this sound similar to what you guys have?
Tips, suggestions?
Any replies greatly appreciated!
At the beginning of this year I began noticing a tremor in my right arm. I originally thought it was nothing because it would happen when I wake up at night. It progressively got worse along with intense eye pain, headaches, and dizziness. I went to a doc and was told I was having nose infection. (Which I knew I didn’t, because I knew what those felt like but just accepted the diagnosed)
Went to an eye doc, said my eyes were perfectly fine. All was well…kinda.
Since the beginning of the year my symptoms have not gone away. I suffer through everything nervous system related. I ended up seeing an ear, nose, throat doc after my problems did not go away. He ended up saying that it was panic attacks. (This will be a reoccurring theme) But I told him I wanted an MRI and he gave it to me.
I take the MRI (brain) to a Nero Doc, and at this point in time, he figured it was stress. So he gave me super powerful stress meds, no help. Came back, gave me even stronger meds, no luck. Came back one more time for good measure, the Doc decided to give it one more shot and give me the strongest meds he had. No luck. So now I haven’t seen the Doc in a couple months fearing what may happen next time I show. Oh, MRI was fine.
- What scares me the most now is that I still can walk normally but, my left leg seems jammed or weighted. It’s like it doesn’t want to help my right leg walk. I’ve noticed myself kind of tip sideways at times but always reposition my feet to find balance before a fall.
As of now...
- Any part of my body will twitch constantly, mostly though on my neck, face and legs. I will twitch a lot on the bottom of my feet too. About a month ago my legs developed a terrible muscle pain. Mostly on my legs and thighs. Especially on my left leg. Twitching recently has gotten really bad with-in the last month.
- My fingers will feel tingly and sometimes will become very painful, like someone stabbing a nail in my fingers. At times this will happen with my toes. My lips and mouth also feel tingly. When this happens to the side of my mouth my face feels like it’s sagging.
- My body will itch at times during the day.
- At times I have a tough time swallowing, and my neck feels stiff, like a real tight rubber band.
- Every night, before sleep, right on schedule, all these symptoms will come to life. Twitching and moving taking over my body for awhile.
- The most annoying thing at night is that I have uncontrolled body movements, mostly with my neck and head. I also have these terrible flashing lights with my eyes that occur with the slightest noise or sound.
For months I figured ALS would be so rare for a twenty year old to obtain. (Or so I’m told) Now though, I feel that I’m running out of options before I hear the DX that I’m completely dreading. Another problem that I’m encountering is that Docs has said its stress so many times, that my entire family has taken up the talking points. Thinking like I’m nuts. You know what stresses me out though? Being told I’m too stress…
I left out some details but I figure you get the jest of things.
Couple of questions…
I will see the nero Jan 5, and was wondering is there anything I should ask the Doc specifically relating to Als/Mnd.
Does this sound similar to what you guys have?
Tips, suggestions?
Any replies greatly appreciated!