Old 04-13-2018, 04:34 PM #1 (permalink)
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Default Cleveland Neurology - Need Recommendation

Hello,

Did not know if this was the appropriate category to post in, so my apologies if that is the case. Have perused/read several threads on here for months now in search of some guidance. I have two specific questions/topics:

1) Had to move for work recently so finding a new GP (first appointment on Monday) and would like to get a workup with a solid neurologist. Was curious if anybody had recommendations for practices and/or specific neuro-muscular specialists (if that is permitted per the forum rules) that they would recommend in Cleveland, OH? While I have several questions that I would love to ask here, I realize the best path forward is to work with a competent neuro. Would like someone solid with EMG. Any thoughts?

2) Experiencing a few curious symptoms... been persistent and progressing for last year. Went through the ringer with several tests (blood, brain/spine MRI, CT, etc). All came out negative, which is a great blessing, but the issues persist (hence my pursuit of a neurologist above).

One curious item that came up was a positive test for a MTHFR mutation. Have any PALS/CALS come across this before? If so, has anyone found any interesting research/info on the topic as it relates to neuromuscular diseases? Much of what I read delves into heart disease and miscarriages, however, the mutation seems to cause a decreased ability to methylate... can't process/use vitamin B/folate properly... you probably see where I am going here.

Thank you all for your time and consideration... it is very much appreciated.
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Old 04-13-2018, 06:48 PM #2 (permalink)
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Default Re: Cleveland Neurology - Need Recommendation

Ohio, this is the right place. Case Western and the Cleveland Clinic have solid centers. However, one or the other may be in-network for you. I am sure Ohioans will chime in. But really, I would consider and discuss w/ the GP a start with the medical genetics service since the list of possible manifestations in your case crosses multiple systems.

Best,
Laurie
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