Yfeasmth
New member
- Joined
- May 6, 2016
- Messages
- 8
- Reason
- Learn about ALS
- Country
- US
- State
- Maryland
- City
- Somewhere
Hello Everyone,
I have been following the forums for sometime now and this is my first post. I will try my best to describe my symptoms and tests.
Symptom onset: Lower back pain with tripping over feet (right foot). Lumbar MRI ordered (see below). (Lumbar did show some issues, but the neurologist believes the issues are minor.) Proceeded with shooting pain down my left leg, numbness in the groin region, tingling sensation in the feet, legs and hands. Symptoms persisted. As time went on I felt dizzy and generally uneasy, I was running into things and felt stiff. My legs also felt like they were shaking and I couldn't stand for long extended periods of time before having to sit.
Saw Neurologist for the first time. He examined the MRI and gave me a perfect normal neuro exam, except he noted hyperreflexia and noted the numbness. Ran a series of MRI (Head, cervical), CT of cervical, and a series of blood tests. Everything came back normal, so he suggested we go with an EMG to see if we could find anything. He tested my right leg, left leg, lumbar paraspinal and thoracic paraspinal muscles. The EMG came back abnormal, the nerve study was normal. (See below). A tremor has recently developed on both sides (started left hand, not is on the right hand) and my entire body aches with bone pain and shooting pains.
Our next step is an MRI of the Thoracic Spine with and without contrast and if that is normal a spinal tap. He said he doesn't know what is wrong with me and if these tests are normal it opens up a whole host of new questions he simply doesn't have the answer for and intends to send me to John's Hopkins for further evaluation.
My big question is, on the EMG study he suggested I have a multifocal disorder of the motor function and a clinical correlation is required. He said he doesn't believe it to be ALS, but has no explanation for the denervation in the back (he is hoping he finds something on the thoracic MRI that could explain it) and continues to ask if I remember anyone ever telling me that I had hyperreflexia. Based on my understanding, MMN is only lower neuron and not upper, whereas hyperreflexia suggests upper issues.
Any input or advice would be appreciated. Please see attachments for examinations. Family history with ALS on Paternal Grandmother. Dad and his siblings do not display symptoms.
I have been following the forums for sometime now and this is my first post. I will try my best to describe my symptoms and tests.
Symptom onset: Lower back pain with tripping over feet (right foot). Lumbar MRI ordered (see below). (Lumbar did show some issues, but the neurologist believes the issues are minor.) Proceeded with shooting pain down my left leg, numbness in the groin region, tingling sensation in the feet, legs and hands. Symptoms persisted. As time went on I felt dizzy and generally uneasy, I was running into things and felt stiff. My legs also felt like they were shaking and I couldn't stand for long extended periods of time before having to sit.
Saw Neurologist for the first time. He examined the MRI and gave me a perfect normal neuro exam, except he noted hyperreflexia and noted the numbness. Ran a series of MRI (Head, cervical), CT of cervical, and a series of blood tests. Everything came back normal, so he suggested we go with an EMG to see if we could find anything. He tested my right leg, left leg, lumbar paraspinal and thoracic paraspinal muscles. The EMG came back abnormal, the nerve study was normal. (See below). A tremor has recently developed on both sides (started left hand, not is on the right hand) and my entire body aches with bone pain and shooting pains.
Our next step is an MRI of the Thoracic Spine with and without contrast and if that is normal a spinal tap. He said he doesn't know what is wrong with me and if these tests are normal it opens up a whole host of new questions he simply doesn't have the answer for and intends to send me to John's Hopkins for further evaluation.
My big question is, on the EMG study he suggested I have a multifocal disorder of the motor function and a clinical correlation is required. He said he doesn't believe it to be ALS, but has no explanation for the denervation in the back (he is hoping he finds something on the thoracic MRI that could explain it) and continues to ask if I remember anyone ever telling me that I had hyperreflexia. Based on my understanding, MMN is only lower neuron and not upper, whereas hyperreflexia suggests upper issues.
Any input or advice would be appreciated. Please see attachments for examinations. Family history with ALS on Paternal Grandmother. Dad and his siblings do not display symptoms.