Veryscaredmummy
New member
- Joined
- Apr 20, 2016
- Messages
- 2
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- Cheshire
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- Winsford
Hi.
I'm new here but I've been following for a while.I've not wanted to post before as I know many of you have real and diagnosed problems, and I did not want to waste your precious time.
My anxiety however is getting difficult to control (I am signing up for counselling while I wait to get to the bottom of my physical symptoms) and I figured this part wouldn't exist if you didn't want to help people that are in limbo!
About 9 months ago I noticed light fluttering in my stomach along with some pain and bloating. A short while after I started getting fasciculations everywhere (feet,calves,thighs,stomach,lip,eyebrow etc) but they were most prominent in my calves and thighs. About the same time I noticed asymmetrical muscle loss in my right thigh, hip, and buttock. I also had some cramp, generalised fatigue, and was finding my arms were tiring from driving and drying my hair.
At this point I went for a private neurology appointment and had an emg and nerve conduction study of the feet,calves, thigh,abdomen, arms, and lip.Only finding was widespread but "clean" fasciculations. Neurologist was unconcerned by somewhat fast reflexes and the muscle imbalance and advised PT.MRI head and c spine clear.numerous bloods clear.
I have been seeing the pt who has recenly corrected a rotated pelvis. However in the 6months since seeing the neurologist I have lost muscle from head to toe (at least 2cm more on thigh according to pt), have intermittent pains in my right shoulder,arm,and wrist, accompanied by weakness (not clinical), and more focal atrophy of Palm and wrist, Tmj symptoms with muscle loss of right side of face, and sharp intermittent rib pain and difficulty catching a breath particularly when sitting or lying down. I feel weaker all over the right side and fasciculations, cramp, and intermittent stiffness persist. I have also had intermittent brief periods of numb hand/foot with difficulty moving toes and fingers.My family doctor and PT acknowledge the muscle loss/imbalance and I await a further neurobiology appointment and MRI of neck down.
I know that pain doesn't typically feature in ALS but it is not the dominant feature of what I am experiencing,and I cannot find anything else that explains the progressive asymmetrical muscle loss from face down,fasciculations, and somewhat brisk reflexes. Any ideas? I would greatly appreciate your wisdom at what is a hugely difficult time.
Thank you
I'm new here but I've been following for a while.I've not wanted to post before as I know many of you have real and diagnosed problems, and I did not want to waste your precious time.
My anxiety however is getting difficult to control (I am signing up for counselling while I wait to get to the bottom of my physical symptoms) and I figured this part wouldn't exist if you didn't want to help people that are in limbo!
About 9 months ago I noticed light fluttering in my stomach along with some pain and bloating. A short while after I started getting fasciculations everywhere (feet,calves,thighs,stomach,lip,eyebrow etc) but they were most prominent in my calves and thighs. About the same time I noticed asymmetrical muscle loss in my right thigh, hip, and buttock. I also had some cramp, generalised fatigue, and was finding my arms were tiring from driving and drying my hair.
At this point I went for a private neurology appointment and had an emg and nerve conduction study of the feet,calves, thigh,abdomen, arms, and lip.Only finding was widespread but "clean" fasciculations. Neurologist was unconcerned by somewhat fast reflexes and the muscle imbalance and advised PT.MRI head and c spine clear.numerous bloods clear.
I have been seeing the pt who has recenly corrected a rotated pelvis. However in the 6months since seeing the neurologist I have lost muscle from head to toe (at least 2cm more on thigh according to pt), have intermittent pains in my right shoulder,arm,and wrist, accompanied by weakness (not clinical), and more focal atrophy of Palm and wrist, Tmj symptoms with muscle loss of right side of face, and sharp intermittent rib pain and difficulty catching a breath particularly when sitting or lying down. I feel weaker all over the right side and fasciculations, cramp, and intermittent stiffness persist. I have also had intermittent brief periods of numb hand/foot with difficulty moving toes and fingers.My family doctor and PT acknowledge the muscle loss/imbalance and I await a further neurobiology appointment and MRI of neck down.
I know that pain doesn't typically feature in ALS but it is not the dominant feature of what I am experiencing,and I cannot find anything else that explains the progressive asymmetrical muscle loss from face down,fasciculations, and somewhat brisk reflexes. Any ideas? I would greatly appreciate your wisdom at what is a hugely difficult time.
Thank you