Chrissylou90
New member
- Joined
- Jun 29, 2015
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Ohio
- City
- Cincinnati
Hello everyone,
I understand that you probably get tired of reading posts about concerned people and their current symptoms. I'm just worried and my family and friends are no longer good sounding boards for my thoughts because they want to think the absolute best (which I do to). I ask that you just hear me put and maybe you could out some of my concerns to rest.
I started having symptoms about a year ago and my first doctors appointment was about 8months ago. My hands started going numb and I was unable to grasp objects. For the first few months this would come and go in week periods. This problem along with pain like muscle spasms then went from my hands all the way up my neck.
My GP was concerned because I'm an otherwise fairly healthy, fairly active 24 year old woman. He sent me to a neurologist. From there I had multiple head and c-spine MRIs which came back completely normal. I also had tons of blood work done which all came back normal. The doctors had eliminated thyroid, diabetes, nutrient unbalances, arthritis (x-rays), tumors, pinched nerver, MS, disc problems, and probably more.
Finally they decided to do an EMG and nerve conduction study on my arms. Both came back abnormal. At this point I am having trouble dropping things like water bote and my phone and it is very very hard for me to use a fork or pen or put earrings in or tie my shoes do to the grasping the small objects. These results made them concerned for carpl tunnel syndrome so I was referred to a hand surgeon and neurosurgeon for opinions. Both agreed despite my EMG results they didn't not think it was CTS but were concerned about the symptoms.
Over the past three months since my EMG I have started to notice the tingling, weakness, and muscle cramps in my legs and back as well. I also have muscle twitches were I will be still and it is a visble twitch of my muscle. I also feel exhausted. I am use to being on the go so this one is hard for me. I could take the stairs in my parking garge and not be like out of breath but just feel the need to lie down for a break. I played a game of air hockey this weekend and felt like I couldn't raise my arm afterwards. My current neurologist is out of ideas and wants me to see others or wait 6 months to see if it improves. Because my symptoms have got much worse over 8 months I am waiting to see another neurologist about 4 hours away who will have better resources.
If anyone has any advice or can relate to these symptoms I would greatly appreciate it.
Thank you for all of your time!
I understand that you probably get tired of reading posts about concerned people and their current symptoms. I'm just worried and my family and friends are no longer good sounding boards for my thoughts because they want to think the absolute best (which I do to). I ask that you just hear me put and maybe you could out some of my concerns to rest.
I started having symptoms about a year ago and my first doctors appointment was about 8months ago. My hands started going numb and I was unable to grasp objects. For the first few months this would come and go in week periods. This problem along with pain like muscle spasms then went from my hands all the way up my neck.
My GP was concerned because I'm an otherwise fairly healthy, fairly active 24 year old woman. He sent me to a neurologist. From there I had multiple head and c-spine MRIs which came back completely normal. I also had tons of blood work done which all came back normal. The doctors had eliminated thyroid, diabetes, nutrient unbalances, arthritis (x-rays), tumors, pinched nerver, MS, disc problems, and probably more.
Finally they decided to do an EMG and nerve conduction study on my arms. Both came back abnormal. At this point I am having trouble dropping things like water bote and my phone and it is very very hard for me to use a fork or pen or put earrings in or tie my shoes do to the grasping the small objects. These results made them concerned for carpl tunnel syndrome so I was referred to a hand surgeon and neurosurgeon for opinions. Both agreed despite my EMG results they didn't not think it was CTS but were concerned about the symptoms.
Over the past three months since my EMG I have started to notice the tingling, weakness, and muscle cramps in my legs and back as well. I also have muscle twitches were I will be still and it is a visble twitch of my muscle. I also feel exhausted. I am use to being on the go so this one is hard for me. I could take the stairs in my parking garge and not be like out of breath but just feel the need to lie down for a break. I played a game of air hockey this weekend and felt like I couldn't raise my arm afterwards. My current neurologist is out of ideas and wants me to see others or wait 6 months to see if it improves. Because my symptoms have got much worse over 8 months I am waiting to see another neurologist about 4 hours away who will have better resources.
If anyone has any advice or can relate to these symptoms I would greatly appreciate it.
Thank you for all of your time!
