Emory follow-up on June 30th

[hunterross258]

Hey everyone - I had posted a few months ago, March to be exact, regarding my visit to Dr. Glass at Emory. I came away with a preliminary diagnosis of Parsonage-Turner Syndrome or Idiopathic Brachial Neuritis.

My follow-up is in a little under two weeks and I am really level headed, unlike I was before. Dr. Glass told me I would and should be better when I came back for re-evaluation, but if anything things have slowly gotten worse or stayed somewhat the same.

I have no pain, but my tricep and upper left arm muscles twitch like crazy whenever I lift something or anything. I know things aren't about feeling, but my arms just get tired much more quickly. I still have noted atrophy in my thumb and now the forearm extensors.

I assume Glass will want to do another EMG at some point, but just wanted to update and will follow up after my appointment on the 30th.

 

[Nikki J]

So what happened at the appointment?

 

[hunterross258]

Sorry, big weekend ahead at work. No change in strength, reflexes or anything. Dr. Glass thinks that I, at one point, had Parsonage-Turner or a Brachial Plexus injury and my lingering symptoms are from that. Eventually, he believes it will go away since it hasn't progressed clinically since my early March appt.

Since I am not weak, he doesn't see the point of another EMG, which I did not question and he sees no signs of a more serious systemic disease.

He said if I want a follow-up, I can schedule one, but he doesn't think it is necessary unless there's a change in symptoms. He saw my twitching and the videos of twitching I sent him and that didn't really make him lean one way or the other when he examined me.

No progression is good news, so I am going to continue to live my life and support those with the disease in my area. Enrolled in the volunteer program at the ALS Georgia Chapter.

 

[Nikki J]

Great news. And sounds like a wonderful plan. Best of luck and have a long wonderful life

 

[Dusty7]

Congratulations! Definitely good news.