FrenchFries
Member
- Joined
- Jun 17, 2014
- Messages
- 29
- Reason
- Other
- Country
- FR
- State
- Paris
- City
- Paris
Hi Everyone,
I'am a 35 year old man. I am experimenting progressive neurologic disorders since november 2012. I have already post in this section, this is kind of update.
I am not anxious neither overreactive. Towards the stickies, I do not have ALS (many of the symptoms listed below are supposed to rule out ALS). In regards to my condition and my analysis, I coudn't find anything else that fit to my symptoms. I do not seek polemic or agressivity, I am just trying to figure out what happens.
symptoms (progressively stronger):
- horse voice, throat and face is stiffer day after day : I now choke on food and have trouble swallowing (I still can eat with caution)
-"stiffness" is spreading in the whole body, i'am feeling now as if I have 80 year old: right side of the body is more affected
- widespread faciculations, "anormally liquid" salivation and all over muscles fatigue
- I have also "smaller" symptoms :joint popin', pain, numbness, anormal skin sensivity to hot and cold, dry skin on my face
Investigations:
> MRI, CT scan, blood test : everything is OK.
My last EMG (the 23th January) vas clean. The neuro prescribed me a 3-days hospitalization (in march) to do genetic tests, muscular MRI, biopsy. ( lucky to be in france for that, tit's mostly free)
Is someone as ever done this kind of tests? particularly muscle MRI?
Thank you!
FF
I'am a 35 year old man. I am experimenting progressive neurologic disorders since november 2012. I have already post in this section, this is kind of update.
I am not anxious neither overreactive. Towards the stickies, I do not have ALS (many of the symptoms listed below are supposed to rule out ALS). In regards to my condition and my analysis, I coudn't find anything else that fit to my symptoms. I do not seek polemic or agressivity, I am just trying to figure out what happens.
symptoms (progressively stronger):
- horse voice, throat and face is stiffer day after day : I now choke on food and have trouble swallowing (I still can eat with caution)
-"stiffness" is spreading in the whole body, i'am feeling now as if I have 80 year old: right side of the body is more affected
- widespread faciculations, "anormally liquid" salivation and all over muscles fatigue
- I have also "smaller" symptoms :joint popin', pain, numbness, anormal skin sensivity to hot and cold, dry skin on my face
Investigations:
> MRI, CT scan, blood test : everything is OK.
My last EMG (the 23th January) vas clean. The neuro prescribed me a 3-days hospitalization (in march) to do genetic tests, muscular MRI, biopsy. ( lucky to be in france for that, tit's mostly free)
Is someone as ever done this kind of tests? particularly muscle MRI?
Thank you!
FF