Sanbrii's Questions as Its Own Thread

[sanbri123]

Hi I am new to this forum and i appreciate that people with this illness have a lot of people asking all sorts of questions. I have been just over a year trying to find out what is wrong with me and i still haven't been diagnosed. It all started with what i thought was a heavy leg. I had loads of blood tests done and they were all fine. They then referred to to a physiotherapist. she examinined me and said i had foot drop and referred me to a neurologist immediately. 3 months later my appointment at the neurologist, in the examination he said it wasn't just drop foot but the wholw left leg was very weak including the thigh.ankle foot and toes and ordered an MRI of the cervical spine and said he was 90% sure it was a cervical myleopthy. Results of that Mri was normal. He then ordered Mri thoracic spine and once again that was normal so decded to refer me for emg. In the meantime while waiting for this test three fingers on right hand weakened. The last time i saw him in October the fingers were weak. he brought forward the appointment for emg. when i had this done he said there was something wrong with the muscle in arm and would send results to neurologist. i have recently had a brain scan but dont know result yet. i have now got weakness in fingers on both hands and the last 3 fingers are bent into my palm and i cannot lift them to straighten them. i do have twiches but not just in one place but they are randomly going all over and not all the time. I am getting depressed and still got to wait until the end of january for my next appointment which seems to be a long time and the other thing is I can swallow ok,but for some reason i am constantly drooling. has

 

[azgirl]

I would recommend that you get an appointment with a neuromuscular specialist, not just a regular doctor or neurologist.

 

[sanbri123]

Thank you for moving my post i wasn't sure how to start. thanks for your advice. i didn't realise they were different specialists, neurologists and neuromuscular specialists. I must admit that i am getting anxious about how my condition is deterioating so quickly and whatever it is, or turns out to be, I am not being treated for it.

 

[gooseberry]

I agree with azgirl. You need to see a neuromuscular doctor. I would call to see if they have a cancellation list at your neurologist. Does the neuro need to refer you to a neuromuscular doc or can you self refer?

 

[sanbri123]

unfortunately, iwill have to get my doctor to refer me and the process would take possibly 6 months so the appointment in late january with neurologist would come first. not sure if i would need to ask him if he could refer me then. it just seems that its taking for ever and i still dont know whats causing these problems. at the moment i feel lonely with this illness