Hi, I'm new to the forum and would appreciate your thoughts on my history symptoms. Specifically, in there any possible way, within reason, that this is not ALS?
In 2002, I developed UMN symptoms/signs, including cramping, spasticity, heavy limbs, hyper reflexes, and clonus. Also had bodywide twitching and dizziness. No weakness. Clean EMGs, MRIs, and all other tests. The symptoms continued for 11 years to a much lesser degree. Was able to play basketball, run, lift weights, and cycle long distances during this 11 year period with no problems except cramping. Did not really think about ALS after first 2 - 3 years of symptoms.
About 6 months to a year ago, started having trouble swallowing solid foods. Could chew OK, but food got stuck going down esophagus. Two months ago, started having constipation, rapid weight loss (15 lbs in a week), shortness of breath, loss of muscle bulk bodywide (went from XXL to L in a week or so), arms and legs feel weak, choking on both liquids and solids, and clearing throat after eating. Normal clinical exam three weeks ago from ALS specialist. Also, clean EMG of right leg and arm three weeks ago. This morning, noticed atrophy on right side of face along jaw line.
Thank you.
In 2002, I developed UMN symptoms/signs, including cramping, spasticity, heavy limbs, hyper reflexes, and clonus. Also had bodywide twitching and dizziness. No weakness. Clean EMGs, MRIs, and all other tests. The symptoms continued for 11 years to a much lesser degree. Was able to play basketball, run, lift weights, and cycle long distances during this 11 year period with no problems except cramping. Did not really think about ALS after first 2 - 3 years of symptoms.
About 6 months to a year ago, started having trouble swallowing solid foods. Could chew OK, but food got stuck going down esophagus. Two months ago, started having constipation, rapid weight loss (15 lbs in a week), shortness of breath, loss of muscle bulk bodywide (went from XXL to L in a week or so), arms and legs feel weak, choking on both liquids and solids, and clearing throat after eating. Normal clinical exam three weeks ago from ALS specialist. Also, clean EMG of right leg and arm three weeks ago. This morning, noticed atrophy on right side of face along jaw line.
Thank you.