nursevictoria
New member
- Joined
- May 4, 2012
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- New York
- City
- Albany
I am 21 year old female. Was very active prior to symptom onset. Here is my story.
Week of March 14. Noticed electrical feeling in legs after exercising.
Few days later. Limb jerks and twitches all over body(Face, chest, abs, back, shoulders, legs, "down there", butt, lips, thighs, feet..everywhere) Buzzes, thumps, long twitches, pops, vibrations..
Burning pain in left thigh only while at rest. Went away 2 weeks later.
Symptoms persisted, went to neuro and had a clinical Apr 14. Clean clinical exam, except for clonus on left ankle and hyperreflexia. NO WEAKNESS. Tongue twitching, wave-like*
Symptoms persisted. had an EMG performed.(Fri may 4) on both legs and both arms. facsiculations on every muscle EMGed, along with a few peaked waves(sharp waves?) nerve conduction study revealed hyperactive muscle activity. My neuro saw it fit to send me to an ALS specialist in our area because of my symptoms. (no appointment yet)
The only odd thing I have had is an awkward feeling in my right arm. comes and goes. sometimes feels like 'jelly' and uncoordinated. Have had that since the beginning.
I have no voluntary muscle impairment, no clinical weakness.. I can walk and talk and breath normally. I can run. I can dance. I can do push ups.
Is this early ALS? I am very confused about what is going on here? ANY help would be appreciated.
Week of March 14. Noticed electrical feeling in legs after exercising.
Few days later. Limb jerks and twitches all over body(Face, chest, abs, back, shoulders, legs, "down there", butt, lips, thighs, feet..everywhere) Buzzes, thumps, long twitches, pops, vibrations..
Burning pain in left thigh only while at rest. Went away 2 weeks later.
Symptoms persisted, went to neuro and had a clinical Apr 14. Clean clinical exam, except for clonus on left ankle and hyperreflexia. NO WEAKNESS. Tongue twitching, wave-like*
Symptoms persisted. had an EMG performed.(Fri may 4) on both legs and both arms. facsiculations on every muscle EMGed, along with a few peaked waves(sharp waves?) nerve conduction study revealed hyperactive muscle activity. My neuro saw it fit to send me to an ALS specialist in our area because of my symptoms. (no appointment yet)
The only odd thing I have had is an awkward feeling in my right arm. comes and goes. sometimes feels like 'jelly' and uncoordinated. Have had that since the beginning.
I have no voluntary muscle impairment, no clinical weakness.. I can walk and talk and breath normally. I can run. I can dance. I can do push ups.
Is this early ALS? I am very confused about what is going on here? ANY help would be appreciated.