campoke
New member
- Joined
- Nov 4, 2010
- Messages
- 3
- Reason
- Learn about ALS
- Country
- NL
- State
- brabant
- City
- eindhoven
hi
I don't know where to begin to be honest. I've been feeling very tired lately for the pas year but didn't think to much about it because I didn't do much sports anymore and I am a pretty lazy person + I smoked a lot.
But last beginning from this month it started with a heavy headache like there was a lot if pressure on my skull. So I kinda waited it out but it continued for like a week. medication didn't seem to help. So went to the GP and she didn't find anything abnormal and did some blood tests( those we're all fine btw). So I started freaking out because I also remembered having muscle fasciculations and tremors. So first I thought I had a braintumor or somthing so the GP referred me to the hospital for a CT-scan with contr. and it came back all fine so that was a big relief. But I still was feeling very tired and fatigue. So I had a lot of things checked and was very stressed because I was constantly checking everything and questioning my health. I also developed a breathing problem, first it came and went away but now i'm having it 24/7. It's like i'm not able to breath in hard enough. And it's like breathing isn't going automatic anymore but you have to make an efford with every breath you take it's an horrible focus that's making everything much worse right now. So is it possible that ALS can effect your breathing muscles so fast before any other body parts? Then again went back to the GP and she told me because everything looked fine it was a form a chronic hyperventilation with the stress and anxiety lately. But I don't really believe it because i'm not breathing to much. I told her to refer me to a neuro. And she did some test which we're all good and she told me she saw I was under a lot off stress and thought it was also chronic hyperventilation.
She told me to go to a specialized relaxation-therapist to try and get that breathing under control. So I made the appointment and i'm still on the waiting list, I have to wait for 3 weeks so it's really hard for me atm. I also went to the pneumologist and had my lungs checked because I also smoked a lot ( i've stopped for 2 weeks now) and everything was looked fine, also had a scan made. So started to look around on the internet and found ALS.. better that I dind't but here I am.
But i'm also been experiencing that i'm very tired and it's not like a mental tiredness but really my muscles, my left arm seems weaker but then again it's my bad arm so I maybe thought it's not abnormal.. but i'm getting tired from doing the most simple things like going up the stairs or even brushing my teeth.. I've also went jogging a couple of times to see how my body would react, i'm getting tired almost after 10 minutes it's really abnormal.. I'm kinda hoping it's anxiety or depression and that my mind is playing tricks on me but i'm constantly thinking it's ALS .After things weren't getting any better went back to the GP and told her I was afraid of ALS, she calmed me down and called the neuro to get an emg for me to relax me, and i'm getting one in 2 weeks so i'm so worried every day about what the results will be... i'm trying to stay positive but it's very hard atm also bacause this breathing problem isn't improving. It's hard for me to get some sleep the last weeks. i've also have a lot of muscle fasciculations lately.. I know it's not a sign off ALS, I've had fasciculations all my life and used to laugh about them and show my friends but these ones seem diffrent and less active then the ones i'm had before.. I also have a strange feeling on my right legg like theres ants walking under my skin. I'm also thinking it's hard for the docters to see my problems because they're not as noticable as they should be. And because i'm still very young for this desease (i'm a 21-year old male). I'm trying to stay on the right track here but it's so hard atm.. It's like they allready diagnosed me..I wake an every day and start checking my motor skills it's like i'm turning
in some crazy hypochonriac. Two moths age I was fine, never went to the GP maybe once each year. Now all I do is walking from this Docter to the next...
Anyway thx for listening and i'm hoping for some advice that can keep me from stressing all the time.. sry for the bad english btw, I'm from holland.
aaron.
I don't know where to begin to be honest. I've been feeling very tired lately for the pas year but didn't think to much about it because I didn't do much sports anymore and I am a pretty lazy person + I smoked a lot.
But last beginning from this month it started with a heavy headache like there was a lot if pressure on my skull. So I kinda waited it out but it continued for like a week. medication didn't seem to help. So went to the GP and she didn't find anything abnormal and did some blood tests( those we're all fine btw). So I started freaking out because I also remembered having muscle fasciculations and tremors. So first I thought I had a braintumor or somthing so the GP referred me to the hospital for a CT-scan with contr. and it came back all fine so that was a big relief. But I still was feeling very tired and fatigue. So I had a lot of things checked and was very stressed because I was constantly checking everything and questioning my health. I also developed a breathing problem, first it came and went away but now i'm having it 24/7. It's like i'm not able to breath in hard enough. And it's like breathing isn't going automatic anymore but you have to make an efford with every breath you take it's an horrible focus that's making everything much worse right now. So is it possible that ALS can effect your breathing muscles so fast before any other body parts? Then again went back to the GP and she told me because everything looked fine it was a form a chronic hyperventilation with the stress and anxiety lately. But I don't really believe it because i'm not breathing to much. I told her to refer me to a neuro. And she did some test which we're all good and she told me she saw I was under a lot off stress and thought it was also chronic hyperventilation.
She told me to go to a specialized relaxation-therapist to try and get that breathing under control. So I made the appointment and i'm still on the waiting list, I have to wait for 3 weeks so it's really hard for me atm. I also went to the pneumologist and had my lungs checked because I also smoked a lot ( i've stopped for 2 weeks now) and everything was looked fine, also had a scan made. So started to look around on the internet and found ALS.. better that I dind't but here I am.
But i'm also been experiencing that i'm very tired and it's not like a mental tiredness but really my muscles, my left arm seems weaker but then again it's my bad arm so I maybe thought it's not abnormal.. but i'm getting tired from doing the most simple things like going up the stairs or even brushing my teeth.. I've also went jogging a couple of times to see how my body would react, i'm getting tired almost after 10 minutes it's really abnormal.. I'm kinda hoping it's anxiety or depression and that my mind is playing tricks on me but i'm constantly thinking it's ALS .After things weren't getting any better went back to the GP and told her I was afraid of ALS, she calmed me down and called the neuro to get an emg for me to relax me, and i'm getting one in 2 weeks so i'm so worried every day about what the results will be... i'm trying to stay positive but it's very hard atm also bacause this breathing problem isn't improving. It's hard for me to get some sleep the last weeks. i've also have a lot of muscle fasciculations lately.. I know it's not a sign off ALS, I've had fasciculations all my life and used to laugh about them and show my friends but these ones seem diffrent and less active then the ones i'm had before.. I also have a strange feeling on my right legg like theres ants walking under my skin. I'm also thinking it's hard for the docters to see my problems because they're not as noticable as they should be. And because i'm still very young for this desease (i'm a 21-year old male). I'm trying to stay on the right track here but it's so hard atm.. It's like they allready diagnosed me..I wake an every day and start checking my motor skills it's like i'm turning
in some crazy hypochonriac. Two moths age I was fine, never went to the GP maybe once each year. Now all I do is walking from this Docter to the next...
Anyway thx for listening and i'm hoping for some advice that can keep me from stressing all the time.. sry for the bad english btw, I'm from holland.
aaron.
