Jakv
Member
- Joined
- Mar 4, 2010
- Messages
- 19
- Reason
- Learn about ALS
- Country
- US
- State
- New York
- City
- 11412
I am a 24 year old female.
About 3 months ago I started having muscle twitching which began in my scalp and spread throughout every part of my body except my left arm and leg. Coupled with this, I would also have what felt like squeezing of my muscles in my neck and upper back. This squeezing was very painful. Then just as mysteriously as it came, it left.
About 2 and half weeks ago now the twitching comes back and so does the pain in my back and shoulders. Then that pain spread to my right arm and leg. With that I have been feeling disoriented sometimes and losing my train of thought in the middle of some sentences. Then about 2 Sundays ago I started feeling a dull weakness in my right arm. When you squeeze it, it hurts. The pain also traveled to my fingers. Now it's in my left arm. Sometime last week, my tongue started feeling heavy/stiff (think a lisp) and my jaw physically clenches occasionally, making it impossible sometimes to get my words out. This has happened a handful of times. Coupled with the clenching of my jaw, my neck will also clench, and once, my hands clenched as well. Now, where the squeezing of my back and neck muscles took place, it sometimes feels like I have something crawling underneath my skin.
Swallowing was difficult for about 3 days, because the muscles in my neck felt like they were squeezing. Also, I have felt like my whole body was heavy or being weighted down. There is also the heat I was talking about in my neck and the back of my head. There have been headaches in the base of my skull with sharp shooting pains and dizziness and disorientation. Here's where the confusion comes in.
About a month and a half ago, I got an MRI (before everything picked up) and it came back fine. I have had sooo many blood tests done, I can't even and they came back fine. I'm going to the neurologist on Friday but it's literally like torture having to wait so long. Especially with all of these symptoms going into hyperdrive in such a short span of time. I still can type, etc, but sometimes I jerk and so does my finger. Or it shakes (spazzes out).
My questions are, can you feel muscle weakness or does it just happen? Like do you just notice one day, you can't pick up a pen or do some of the things you use to. Can you feel muscle atrophy or does it just happen? What type of difficulty do you have swallowing? Is it a squeezing sensation or no? Do your muscles squeeze when you have ALS?
I'm very much scared, I feel I can't talk to anyone, and I don't know what to do. I'm 24 years old and I took the whole week off of my internship. My parents are telling me to go in today, but my fingers/hands/etc aren't cooperating. I suffer from anxiety so they think that's all this is. I WISH that's all it was. Maybe I'm like the boy who cried wolf, because now they won't take me seriously.
RESPONSES WILL BE HELPFUL!
About 3 months ago I started having muscle twitching which began in my scalp and spread throughout every part of my body except my left arm and leg. Coupled with this, I would also have what felt like squeezing of my muscles in my neck and upper back. This squeezing was very painful. Then just as mysteriously as it came, it left.
About 2 and half weeks ago now the twitching comes back and so does the pain in my back and shoulders. Then that pain spread to my right arm and leg. With that I have been feeling disoriented sometimes and losing my train of thought in the middle of some sentences. Then about 2 Sundays ago I started feeling a dull weakness in my right arm. When you squeeze it, it hurts. The pain also traveled to my fingers. Now it's in my left arm. Sometime last week, my tongue started feeling heavy/stiff (think a lisp) and my jaw physically clenches occasionally, making it impossible sometimes to get my words out. This has happened a handful of times. Coupled with the clenching of my jaw, my neck will also clench, and once, my hands clenched as well. Now, where the squeezing of my back and neck muscles took place, it sometimes feels like I have something crawling underneath my skin.
Swallowing was difficult for about 3 days, because the muscles in my neck felt like they were squeezing. Also, I have felt like my whole body was heavy or being weighted down. There is also the heat I was talking about in my neck and the back of my head. There have been headaches in the base of my skull with sharp shooting pains and dizziness and disorientation. Here's where the confusion comes in.
About a month and a half ago, I got an MRI (before everything picked up) and it came back fine. I have had sooo many blood tests done, I can't even and they came back fine. I'm going to the neurologist on Friday but it's literally like torture having to wait so long. Especially with all of these symptoms going into hyperdrive in such a short span of time. I still can type, etc, but sometimes I jerk and so does my finger. Or it shakes (spazzes out).
My questions are, can you feel muscle weakness or does it just happen? Like do you just notice one day, you can't pick up a pen or do some of the things you use to. Can you feel muscle atrophy or does it just happen? What type of difficulty do you have swallowing? Is it a squeezing sensation or no? Do your muscles squeeze when you have ALS?
I'm very much scared, I feel I can't talk to anyone, and I don't know what to do. I'm 24 years old and I took the whole week off of my internship. My parents are telling me to go in today, but my fingers/hands/etc aren't cooperating. I suffer from anxiety so they think that's all this is. I WISH that's all it was. Maybe I'm like the boy who cried wolf, because now they won't take me seriously.
RESPONSES WILL BE HELPFUL!
