Steph, I was about to order a pack of trackers just before the phone went missing!! ARGH. I'll get it sorted out and then tag everything.
So I left early Saturday and went straight to the outlet mall with my SIL. She went home from there and I headed to Mt. Airey, NC. I was going to get a hotel and see my step brother and his wife in the morning, but realized I really didn't want to be alone so I called them. She already had the bed ready for me. It was a lovely evening and a fabulous night of sleep (10 hours). We watched a movie Sunday after I realized the quilt store I wanted to visit is closed on Sunday's. LOL...that's ok. I came home Sunday because I realized our daughter had only had 3 hours sleep in 36. She experienced pretty much the full range of what's happening these days, and I'm sure the emotional toll was a bad as the physical one. She told me to say another night, but I'll reserve that for the next time. She was also late getting a school assignment turned in. Oh, and Heidi hadn't gotten a walk in two days.
All in all, I had a GREAT nights sleep and a bunch of hours of just looking after myself, hubby was obviously glad to see me but didn't ask me to come home early, and our daughter says she has a new appreciation for what's going on here and will, I'm sure, share that with her siblings. They are all supportive, but as she says, they just really can't imagine it until they experience it.
Matt is sleeping a lot more these days. I don't know if it's because he's taking pain pills or it's progression, but he says he needs the pills for pain in his hips and legs. I keep checking his o2 and it's not dropping, but our daughter says it's time for attendant controls because he falls asleep in the van when we go anywhere and is so groggy that getting down the hill from the garage and across the very long ramp is dicey at best. I guess I was just slowing accepting...sometimes a fresh look is a good thing. Can we get attendant controls when our PALS can still control the chair, just for those loopey times?
Becky