Amandagall5
Active member
- Joined
- May 9, 2015
- Messages
- 34
- Reason
- Lost a loved one
- Diagnosis
- 12/2012
- Country
- US
- State
- OK
- City
- Midwest city
Here's the story,
My husband was prescribed baclofen 10mg 3x a day for spasticity ( he felt like his body was freezing up especially at night). He wouldn't take the morning dose so his doctor said it wad ok to take one at lunchtime and two before bed. Until yesterday that was what he took and has not been complaining of spasticity for a couple months, so all was ok there. He does have a problem with his right leg stiffening and straightening and his foot coming off the footpad on his wheelchair. This happens about every five minutes or less, each time I have to bend his leg to put his foot back in place. I have done this so much against such resistance from his leg that my arm and shoulder are starting to hurt. So yesterday we saw his neurologist and I asked about the leg. The neuro said it was because the muscles in his leg had too much tone and increased the baclofen to 15 mg 3x day. My husband all of a sudden is refusing to take any baclofen at all, saying it makes him feel bad. This I don't understand since he has been ok all this time up to now. I am so mad and frustrated with this, it seems that he knows better than his doctor, and doesn't want to make things any easier for those looking after him.
He was approved for hospice care today and the nurse is visiting tomorrow to go over things with us. I plan to tell him or her about his stubbornness.
He makes me want to scream sometimes.
Why won't he try to help himself by taking the medicine?
It's no good asking him why he's being like this, he will just say that he doesn't want to talk about it.
Sometimes I just want this to be over already.
Sorry, thanks for listening.
My husband was prescribed baclofen 10mg 3x a day for spasticity ( he felt like his body was freezing up especially at night). He wouldn't take the morning dose so his doctor said it wad ok to take one at lunchtime and two before bed. Until yesterday that was what he took and has not been complaining of spasticity for a couple months, so all was ok there. He does have a problem with his right leg stiffening and straightening and his foot coming off the footpad on his wheelchair. This happens about every five minutes or less, each time I have to bend his leg to put his foot back in place. I have done this so much against such resistance from his leg that my arm and shoulder are starting to hurt. So yesterday we saw his neurologist and I asked about the leg. The neuro said it was because the muscles in his leg had too much tone and increased the baclofen to 15 mg 3x day. My husband all of a sudden is refusing to take any baclofen at all, saying it makes him feel bad. This I don't understand since he has been ok all this time up to now. I am so mad and frustrated with this, it seems that he knows better than his doctor, and doesn't want to make things any easier for those looking after him.
He was approved for hospice care today and the nurse is visiting tomorrow to go over things with us. I plan to tell him or her about his stubbornness.
He makes me want to scream sometimes.
Why won't he try to help himself by taking the medicine?
It's no good asking him why he's being like this, he will just say that he doesn't want to talk about it.
Sometimes I just want this to be over already.
Sorry, thanks for listening.
