Bo Stern blogger of ALS & Caregiving

[maryhahnward]

I've read Bo Stern's blog for a few months now. I like reading it. It reads well, like she is talking to the reader. Bo's blogs strike home, often, and this last one in particular struck many chords.

http://www.bostern.com/blog/2014/10...m=email&utm_campaign=Feed:+BoStern+(Bo+Stern)

 

[affected]

Mary, that was more than worth sharing, I've never read her blog before.

The bit that hit me was "“STEVE doesn’t get a break from ALS. You’re fine. You’ll be fine. You’re not losing your mind.” Except I sort of was."

I so often felt that way - Chris doesn't get a minute away from the disease!

I was finally going to have 5 nights away for respite, despite his being furious about it, with his 3 children helping out and carer staff in from 8am to 7pm. Sadly he passed away about a week before this was to happen...

 

[andycap]

I bought two of her books,and I folllow her blogs....she touches your heart.

 

[Gembead]

Thank you, I have just signed up to her blog, she has a wonderful way with words.
Love Gem

 

[HeatherFeather]

I've been reading her blog - love it! Yes, she does have a way with words, doesn't she!

 

[Calvin-CALS]

I just read her post. It was really what I needed today. I'm not as far along as she seemed to be in the post ... but I'm heading down that slippery slope. Today I am angry, frustrated, and feeling woefully inadequate to the task. And I've hardly left the house for weeks. I need my time away, and soon.

 

[affected]

What do you need to organise in order to get that break from the house?

CALS should never feel guilty about taking breaks, but the sad fact is we usually do!