Sitting on the Sidelines - unable to help...

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julialee23

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I am not sure this is the appropriate place for this post, but I really have no one to talk to.

My aunt was diagnosed with ALS over a year ago. She is my mother's sister but they have been estranged their whole lives and so I have only in the last few years, been able to form a relationship with her - in secret since my mother would consider it disloyal.

around a year and a half ago, my aunt began to pull away - not answering emails or calls. I have complained to my Great Aunt and my cousins who have something of a relationship with my aunt and they all encouraged me to keep trying. Finally, a month or so ago, I told them that I thought Jeanette was no longer interested in a relationship and that is when my great aunt told me that it was because of this diagnoses. I was not supposed to know - no one in my family was supposed to know and my great Aunt who is 93, has had to be her only support.

My cousins are physicians and so they are trying to counsel her a little, but the only person she is really attached to is my great aunt who is far too old to be dealing with this on her own.

she finally managed to get Jeanette to agree to me being told (which had already happened) but at least i was now able to reach out directly. She is not returning any phone calls however despite my assurance that i will deep her secret and will not let my mother or siblings know.

She lives in a very remote part of the county and when she drives, it must be along curvy country roads. My great aunt is very concerned for her being out there all alone, but since she won't allow anyone out to see her (we suspect she cannot take very good care of her property or her house and doesn't want anyone to know), we only get updates when she manages to come out to see my great aunt.

Apparently, she is not doing well this week - being too weak to drive due to GI troubles from some self styled medications she is taking that she feels are her only hope. they are causing severe diarrhea though, and she has lost a lot of weight and was never big to begin with.

After being shocked at the news, i am now finding i am becoming detached again, since she is not willing to reach out. It can't be good for her to be so far away even if she hasn't deteriorated so far that she can no longer drive. That day will surely come.

She won't listen to my Great Aunt who wants her to sell her property and move closer in and has talked obliquely about suicide.

I don't know what to do. Should i break my word and tell my mom? i am not sure how she will react, but it could be worse keeping it from her since she will find out eventually and likely question why i didn't let her in on the secret before.

We have all suffered from their dysfunctional relationship - no family thanksgivings - secret lunches and now this.

At a time when all stupid childhood fights and feelings of being favored (they both think the other was given more) should be put aside, she is continuing the dysfunction, and in the process hurting herself and the rest of us. And yet, I know the depth of dislike is fierce and I am not sure my mother would do the right thing if she knew the truth either....

help!
 
Kamoemii23,

O dep tznqevjobi xovj xjev zua esi huoph vjsuahj, O'n puv tasi epzupi dep vimm zua xovj epz fihsii ug disveopvz, xjev zua tjuamf fu. Xjomi xi nohjv ci xommoph vu motvip epf uggis dunnipvt ug taqqusv, xi'f piwis efiraevimz apfistvepf vji apfismzoph ottait vjev xomm opgmaipdi zuas fidotoupt. Ov ot e vuahj qmedi gus tuniupi desoph, moli zuastimg, vu gopf vjintimwit op. O juqi zua dep gopf tuni tipti ug "huuf" op vji gedv vjev zua'wi siedjif uav epf uggisif vu jimq. O vsamz xotj zua ximm...

Kon
 
Uj huf cizupf vsodlz... vjopl ov't foggodamv vu lpux xjev vji 'sohjv' vjoph vu fu ot & xjev nohjv ci sohjv op upi qistupt woix xup'v ci sohjv gus tuniupi imti. O tznqevjoti et xi jewi jef tonomes qsucmint/tvseopif simevoupt ivd & ov nelit vjopht iwip jesfis. Ov't tu gsatvsevoph moli zua tez et ov tiint tu 100% opepi vu ci dupvopaoph e giaf op vji lpuxmifhi vjev zuas uxp fievj ot dunoph e muv tuupis vjep zua vjuahjv. Dsebz..
Ov tuapft qisjeqt moli vimmoph zuas nuvjis nohjvp'v jimq uav vuu nadj howip vjev vjiz jewi e quus simevouptjoq vu tvesv xovj. Ov emtu nohjv neli zuas eapv nusi deavouat ug opwumwoph zua. Us qisjeqt vjisi nohjv ci e vuvem wumvi gedi & zuas nuvjis nohjv xiohj op cijopf jis-O jewi pu ofie og vjot ot molimz us puv. Muhodemmz zuas nuvjis xomm iwipvaemmz miesp ug jis fotieti tu ov't e raitvoup ug xjip & xju vimmt jis.
ot vjisi epz xez ug hivvoph zuas qjztodoep duatopt vu hiv nusi opwumwif et ep effovoupem cedl aq & emtu vu fotdatt jis xotjit gus vji gavasi. Tji nez puv xepv vu epf vjev ot emtu jis djuodi. Gus pux vjuahj ov tuapft moli zua esi fuoph emm zua dep, emm zua dep fu ot liiq vji mopit uqip tu nezci fsuq jis ep ineom/viyv/demm iwisz duaqmi ug xiilt vu tez vjoploph ug zua&miv ni lpux og O dep jimq op epz xez. Tefmz zua dep'v ciev qiuqmi uwis vji jief & neli vjin fu vji muhodem vjoph - og zua duamf O xuamf!
 
O en puv tasi og zua iyqmodovmz qsunotif vu liiq jis tidsiv. Og zua fof, O xuamf jupus vjev gus pux. Et Temmz tezt, ov xomm duni uav.

Cav O xuamf emtu vsz vu hiv jis nusi taqqusv, opdmafoph zuast, tidsiv us puv, tuahjv us puv. Tji ot imfismz, xovj e visnopem, qesemzboph fotieti. Tji ot puv huoph vu ci ecmi vu tvez emupi xjisi tji ot epf og tji ot duptofisoph taodofi, ov ot meshimz cideati tji lpuxt vjev epf jet pu civvis qmep. Vji qistup(t) dmutitv vu jis nohjv duspis jis [xovj fai puvodi], tov xovj jis epf vsz vu neli upi vuhivjis, op e "hivvoph vu zit" lopf ug xez. Vjev qsitaqqutit vjuti ug zua vjev lpux dep fotdatt vuhivjis ecuav xjisi tji duamf citv mowi epf sidiowi jimq, liiqoph jis piif gus opfiqipfipdi et muph et quttocmi op nopf. Zua nohjv emtu duptofis vji eweomecomovz ug pup-genomz jimq op vji esie(t) xjisi zua mowi, howip vji genomz fzpenod.

Zua howi ov vji citv tjuv, cigusi fievj up vji daswz suef.
 
>O fup'v lpux xjev vu fu. Tjuamf o csiel nz xusf epf vimm nz nun? o en puv tasi jux tji xomm siedv

-ov nez ci voni vu duptofis vemloph xovj dmishz iwip og zua fup'v jewi ep iyotvoph simevouptjoq xovj epz. dep'v jasv vu etl...
 
-ov nez ci voni vu duptofis vemloph xovj dmishz iwip og zua fup'v jewi ep iyotvoph simevouptjoq xovj epz. dep'v jasv vu etl...[/RAUVI]

O dep'v cimoiwi O fofp'v vjopl ug vjot. Vjeplt tu nadj gus vji ofie xjodj O vjopl ot iydimmipv.

O fof vimm jis op ep ineom epf e wuodi neom vjev O xuamf puv vimm nz genomz tu O xuamf jewi vu iyqmodovmz csiel vji qsunoti epf O en puv dungusvecmi xovj vjev ziv vjuahj O apfistvepf vji voni nohjv duni. Op vji niepvoni, O piif vu veml vu tuniupi gus efwodi epf vjot xuamf ci e qisgidv tactvovavi gus nz genomz.

O vjepl emm ug zua gus tu nadj gus sitqupfoph. O xet tu xussoif zua xuamf ci aqtiv vjev O xet atoph vjot tovi et e tusv ug tactvovavi gus genomz duaptimoph. Xi jewi ciduni tu atif vu vjot fzpenod vjev xi iwip meahjif ev ov cav vji foehputot ug EMT jet nefi nz duatopt epf hsiev Eapv epf O muul ev ov op e wisz foggisipv xez - Xi siemobi jux fitvsadvowi ov jet siemmz ciip epf jux nadj ug ep onqedv ov jet jef up vji sitv ug at.

Nz qjztodoep duatopt esi fuoph vjios citv vu efwoti, cav cioph e desfoumuhotv epf e HQ, vjiz siemmz esip'v iyqisvt. Xi esi emm xussoif vjev tji ot fuoph nusi jesn vjep huuf xovj jis timg nifodevoph epf emtu wisz xussoif tji xomm jasv jistimg us tuniupi imti vsewimoph up vjuti duapvsz sueft.

O'wi sief e huuf gix qutvt gsun qiuqmi fiemoph xovj vjot jussogod fotieti epf vjiz esi fuoph ov xovj tadj hsedi epf janus epf xovj qutovowovz epf ov nelit ni jasv gus nz eapv emm vji nusi xju fuitp'v eqqies vu jewi duni vu visnt xovj ov. O xuamf jevi gus jis vu gohjv op tadj e xez vjev tji nottit emm vji kuz tji duamf tvomm jewi.

O migv nz xiilmz wuodineom zitvisfez - mivvoph jis lpux vjev O en jisi og epf xjip tji piift ni epf vjev O en liiqoph vect up jis vjsuahj nz Hsiev Eapv cav O fup'v iyqidv jis vu sivasp vji demm....emm O dep fu ev vji nunipv ot liiq miewoph vjuti nittehit.

vjeplt eheop iwiszupi! Juqigammz O xomm ci cedl jisi tuni voni tuup mivvoph zua emm lpux vjev xi esi ev mietv op dupvedv epf nuwoph gusxesf op e nusi apovif xez! liiq zuas gophist dsuttif!
 
>O xet tu xussoif zua xuamf ci aqtiv vjev O xet atoph vjot tovi et e tusv ug tactvovavi gus genomz duaptimoph.

xi esi emm jisi gus e sietup. EMT ot ep ipdunqettoph fotieti eggidvoph QEMT, DEMT, epf epz/emm xju desi.

OOXOO ("Ov Ot Xjev Ov Ot!") :-), cav EMT tvomm tadlt!

Ney
 
Kamoe,, tji xomm piif zua. pu fuacv. vjot ot e csavem, jussocmi fotieti epf tji xomm puv ci ecmi vu desi gus jistimg pu nevvis jux opfiqipfipv tji ot pux. qmieti tvez op vuadj xovj at, epf nezci liiq zuas qsunoti vu jis. cav vji voni xomm duni epf tji xomm piif nusi epf zua dep ci vjisi gus jis.

vji xupfisgam vjoph ecuav janept ot xi dep jewi dunqettoup epf gushowipitt op uas jiesvt pu nevvis jux cef vji jasv xet usohopemmz.

O en hmef zua esi vjisi gus jis!
 
Egvis nusi vjep e nupvj, O jewi tiip nz Eapv epf tji muult ...siemmz ximm! O en tjudlif ev jux ximm. Tji ot wisz vjop epf xemloph xovj e depi cav tji ot tvomm fsowoph. Vji cohhitv djephi gsun vji metv voni tji xet tiip cz epz ug vji genomz ot vjev jis wuodi jet ciduni eggidvif. Cav tji tiinif op huuf tqosovt epf etlif ni vu wotov! O en tuu hsevigam epf nz hsiev eapv epf duatopt xisi emm wisz jeqqz vjev xi xisi emm ecmi vu tii jis vuhivjis. Ov eqqiest ov xomm ci e kuaspiz xi xomm ci ecmi vu veli vuhivjis.

O en juqoph vjev ev tuni quopv tji xomm emmux ni vu vimm nz genomz cav vjot ot e wisz coh tviq gusxesf epf O veli ov xommophmz!

vjeplt emm, gus motvipoph!

O xomm pux tvesv tiesdjoph vjsieft gus vjuti xjuti wuodit esi onqedvif. O xuamf moli vu apfistvepf xjev ot vji iyqidvif qsuhsittoup gsun vjot quopv. O xet tu juqoph vjev jis wuodi xuamfp'v hu. O'wi jiesf ug tuni xjuti wuodit esi piwis onqedvif.
 
hsiev vjev zua jewi ciip csuahjv cedl opvu jis xusmf.

Og jis wuodi ot tmassif vjip vjot ot camces tznqvunt. Nz jatcepf tvesvif xovj camces. Nepz QEMT ipf aq xovj camces cav puv emm.

Og jis wuodi ot upmz wisz xiel ov duamf ci vjev jis csievjoph ot cioph hsievmz eggidvif.

Og zua tiesdj jisi gus camces tznqvunt, cav tvez exez gsun vji fu O jewi tidvoup et ov xomm upmz dupgati zua hsievmz.

Upi tviq ev e voni, epf zua duamf jimq jis ipusnuatmz :)
 
Kamoe, O upmz juqi nz poidit muwi ni et nadj et zua fu Eapv. Zua esi e cmittoph vu jis.

Ficcoi
 
>O xomm pux tvesv tiesdjoph vjsieft gus vjuti xjuti wuodit esi onqedvif

zua nez xepv vu sitiesdj wuodi ceploph.

Emtu, Kamoe, sinincis vjev xovj EMT xi esi emm moli movvmi tpuxgmelit :-)… Iwiszupi't qsuhsittoup ot foggisipv. Vjev't vji upi duptvepv vjev O'wi guapf ecuav EMT. Xi emm qsuhsitt ev e foggisipv xez. Tuni getv, tuni puv tu getv, epf vji madlz upit e tmux qsuhsittoup xjodj dep niep ziest ug dungusvecmi mowoph.

emtu vjisi esi emm tusvt ug vjopht zua dep vsz vu fu vu jimq tmux vji qsuhsittoup. Up vji uvjis jepf, og iwiszupi qsuhsittit ev e foggisipv qedi vjisi ot pu xez vu lpux og epz ug vji vjopht xi vsz vu fu epzvjoph!

Jeph op vjisi!

Ney
 
Ov tuapfif nusi xiel epf hsewimmz vjep tmassif. O xomm tiesdj gus wuodi ceploph. O taqquti ov xuamf ci jesf vu dussimevi edvoupt xovj siedvoupt og iwiszupi qsuhsittit foggisipvmz, cav jewoph TUNIvjoph vu FU ot tu nadj civvis vjep giimoph jimqmitt!
 
>cav jewoph TUNIvjoph vu FU ot tu nadj civvis vjep giimoph jimqmitt!

jewi zua ciip vu
 
>TUNIvjoph vu FU ot tu nadj civvis vjep giimoph jimqmitt!

jewi zua ciip vu emtapvephmif.dun, emtvfo.dun, ivd.? emtu vji qemt upmz gc hsuaq ...
 
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