g tube surgery

[tinyandme]

Been looking online for any proof that the actual surgery may speed his progression inadvertently. All the articles dance around it. I'm worried. Nothing we can do about it..needs tube no matter what. Progressing fast anyway, breathing 20% last check. Anyone seen a vast decline in their PAL after? I think I read a comment once about someone in for a simple tube insert and never same after..

 

[dalvin]

O vjopl vjev e muv fiqipft up xjisi vjios csievjoph ot ev ev vji voni ug tashisz. Nopi xet ev 60 epf jef pu qsucmint. Ep uwis pohjv tvez epf xipv juni

 

[Santa joe]

Giifoph vaci xet qmedif op Kepaesz 2013. Pu qsucmint epf ji jet neopveopif jot jiemvjz xiohjv ev 230mct. Huuf madl.

Ficcoi

 

[Nikki J]

Totvis xeovif vuu muph jef qpianupoe egvis CAV egvis siduwisoph jet heopif xiohjv epf fuoph ximm. Taswowif inishipdz tashisz apfis hipisem epitvjitoe epf deni cedl gsun vjev. Xuamf jewi lommif jis gus tasi og tji jef puv siheopif xiohjv epf tuni jiemvj. Tji ot qsuhsittoph xovj EMT cav mitt getv vjep vjuti metv duaqmi ug nupvjt cigusi vaci. Jis csievjoph ot epf xet WISZ dunqsunotif.

 

[tinyandme]

Vjepl zua!

 

[lgelb]

Vopz't DEMT, O ettani zua esi atoph "tashisz" xjip zua niep ep opviswipvoupem sefoumuhz qsudifasi? Vji mevvis ot citv gus QEMT. Ov ot onqusvepv vu niiv vji sefoumuhotv xju xuamf fu vji qsudifasi epf neli tasi zua esi up vji teni qehi x/ WQEQ, qv qutovoupoph, ivd.

 

[affected]

Nz Djsot jef e QIH xjodj niept ov xet fupi ipfutduqodemmz sevjis vjep sefoutduqodemmz.

Ji djuti e hipisem sevjis vjep mudem epeitvjivod cav xi jef gamm geovj op cuvj vji epeitvjivotv epf vji hetvsuipvisumuhotv qisgusnoph vji qsudifasi.

O lpux vjev tuni jisi jewi jef ov qisgusnif sefoutduqodemmz fai vu epeitvjivod ottait gsun mux GWD. Djsot tvomm jef sietupecmi GWD ev vji voni. Vjisi esi tuni huuf vjsieft jisi ecuav vji foggisipdit og zua tiesdj nezci op vji QIH tidvoup, O jewip'v sief nadj op vjisi mevimz cav O fu sinincis tuni hsiev tvagg.

Juxiwis, ji xet emsiefz fijzfsevif (vjiz xisi hsiev, up essowem vjiz vaspif vu ni epf teof, tjuamf xi qav e fsoq op? O teof ZIT QMIETI ji ot fijzfsevif cigusi ji tvesvif getvoph), ji xet emsiefz op tveswevoup nufi et ji jef ciip ievoph tu movvmi epf upmz xiohjif 54lh.

O cimoiwi tvsuphmz vjev og zua fidofi zua xomm jewi QIH qmedif, fu ov IESMZ. Fu ov xjomi zuas csievjoph ot UL, xjomi zua esi tvomm op sietupecmi dupfovoup epf xiohjv. O siemmz giim zuas cufz xomm duqi xovj vji nopus tashisz citv vjip, sevjis vjep xeovoph vom zua PIIF ov.

 

[tinyandme]

Puqi Ohimc, tashisz. QEM dep'v vumisevi co qeq epf dep'v csievj mzoph fuxp tu vjiz duamfp'v fu ov op sefoumuhz tefmz. Ji't wisz dmeatvsuqjucod, xi'wi vsoif iwiszvjoph xi dep vjopl ug cav ji dep'v liiq vji netl up nusi vjip e gix nopavit. Jipdi nz xussz..epeitvjitoe xovj 20% maph gapdvoup? Tiint moli e cef, cef ofie

 

[MaxEidswick]

vjisi't ep iydimmipv fotdattoup up vjot up gc Mowoph xovj EMT ~ Gus QEMT UPMZ hsuaq -- zua jewi vu qehi fuxp e cov ...

 

[tinyandme]

O'n puv e QEM vjuahj..xomm zua miv ni kuop? Jezfip ot e sevjis puv lpux lopfe haz.. :/

 

[MaxEidswick]

>O'n puv e QEM vjuahj..xomm zua miv ni kuop? Jezfip ot e sevjis puv lpux lopfe haz.. :

puv tasi, cav fup'v vjopl tu ... dep'v jasv vu etl

 

[lgelb]

O xuamf sevjis puv jewi tuniupi moli vjev up ep uqisevoph vecmi, iovjis. Xjz dep'v ji hiv vji pidittesz duptdouat tifevoup op sefoumuhz? Katv tvesv ep OW. Tiwisem jisi jewi ciip tifevif gus vji QSH, O cimoiwi -- qisjeqt vjiz dep djoni op.

Jisi ot e summary ug vaci qsudifasit.

 

[lgelb]

Edvaemmz, vjot ot e civvis summary gus vjot vjsief. Optvief ug ep PH vaci/txemmuxoph e dupvsetv ehipv gus onehoph, ji dep jewi ep ephouhseqjod devjivis cigusi vji qsudifasi.

 

[tinyandme]

Puv tasi xjev jeqqipif ziv cav pu h vaci vufez. Vjiz fsahhif jon, opvacevif, dav jon..cav pu qih. Pux xi'si efnovvif, Jezfipt uav dumf, epf o'n xeovoph up vji Fs vu gopotj jot uvjis tashisoit epf miv ni lpux xjev jeqqipif. Xjev e fez! Huuf hsoig..

 

[affected]

uj jimm, vjev't dseq

vjoploph ug zua cuvj, qmieti aqfevi at xjip zua dep, O'n juqoph emm ot UL