Danijela
Senior member
- Joined
- Dec 3, 2008
- Messages
- 667
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- UK
- State
- UK
- City
- Bolton
Dear friends,
My lovely Laurence is now deeply asleep, following a horrific few days of respiratory distress. I have called in the district nurses and they have started him on a couple of drugs. The idea is to keep him 'comfortable' - we all know what that means. Our son is here in the house, witnessing all of this. I answer his questions, he knows daddy is now very ill and unable to speak. I am not sure how long he will hold out, O2 now in the 90s after dropping to 60 yesterday. It took 5mg of morphine to sedate him, other drugs just made him sleep for a couple hours, resurface and then go into panic and respiratory distress. He was fighting very hard, but it came to the point where we were using cough assist for 4 hours without the break as he was basically using it to breathe.
I am in some kind of daze, nightmare, no sleep no food no drink just panic, fear, anxiety, and deep deep sadness. I've been travelling this road for a long time, five years... Dani
My lovely Laurence is now deeply asleep, following a horrific few days of respiratory distress. I have called in the district nurses and they have started him on a couple of drugs. The idea is to keep him 'comfortable' - we all know what that means. Our son is here in the house, witnessing all of this. I answer his questions, he knows daddy is now very ill and unable to speak. I am not sure how long he will hold out, O2 now in the 90s after dropping to 60 yesterday. It took 5mg of morphine to sedate him, other drugs just made him sleep for a couple hours, resurface and then go into panic and respiratory distress. He was fighting very hard, but it came to the point where we were using cough assist for 4 hours without the break as he was basically using it to breathe.
I am in some kind of daze, nightmare, no sleep no food no drink just panic, fear, anxiety, and deep deep sadness. I've been travelling this road for a long time, five years... Dani