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Danijela

Senior member
Joined
Dec 3, 2008
Messages
667
Reason
PALS
Diagnosis
11/2008
Country
UK
State
UK
City
Bolton
Dear friends,

My lovely Laurence is now deeply asleep, following a horrific few days of respiratory distress. I have called in the district nurses and they have started him on a couple of drugs. The idea is to keep him 'comfortable' - we all know what that means. Our son is here in the house, witnessing all of this. I answer his questions, he knows daddy is now very ill and unable to speak. I am not sure how long he will hold out, O2 now in the 90s after dropping to 60 yesterday. It took 5mg of morphine to sedate him, other drugs just made him sleep for a couple hours, resurface and then go into panic and respiratory distress. He was fighting very hard, but it came to the point where we were using cough assist for 4 hours without the break as he was basically using it to breathe.

I am in some kind of daze, nightmare, no sleep no food no drink just panic, fear, anxiety, and deep deep sadness. I've been travelling this road for a long time, five years... Dani
 
I will keep you and Laurence in my prayers. God's speed and God bless.
 
Oh Dani,

I am so sad to read this. You are a marvellous and loving carer to your Laurence. My thoughts and prayers are with you during this most difficult time.

I wish you courage.
 
Oh Dani
I am so sorry to hear this. You are such a strong and loving caregiver and partner. Love and prayers
Nikki
 
Dearest Dani
This is such sad news,i can remember when you first joined the forum .
Will keep you all in my thoughts and include you in my prayers.
Godbless.
 
My heartfelt thoughts and prayers are with you and Laurence, Dani.
 
Dani,

Love to you and your family. I will be thinking of you all today. I hope peace and rest find you.

your friend,

Barbie
 
@Danijela:

I am very saddened by these news about your husband.
Sending you thoughts of peace and strength.
 
I am so sorry to hear this. I have read many of your posts and have learned a lot from you. I will be thinking of you and your family.
 
I'm very sorry Dani! My thoughts and prayers to you both. Thank you for being such a good caregiver for him.
 
I'm so terribly sorry. I hope you find the strength to get through this. Hugs and prayers to you and your son!
 
My thoughts and prayers are with you, L and your little one. Peace
 
Thinking of and praying for you, Lawrence and your son. I'm so sorry.
 
Thinking of you Dani during this tough tough time. Please try as best you can to take care of yourself too.
 
oh Dani, all my thoughts are with you all, I can't imagine how hard this is with a young one in the house, but we are all with you
 
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