New to Forum - living long distance from Mom

[Pandabear]

Mom was diagnosed at 73 yrs, Jan 2011, she lives in Wis with her 86 yr old husband who has huge balance problems. So yes that is a huge problem! I am her daughter and live in TX. Mom and Stepdad moved into an independent apt, now finally have home health care coming in almost daily. Stepdad falls all the time, and they so want to be independent and he is stuborn as heck to ask for help. He still drives and he took her to doc and she fell getting into car. Never asked for help and some how got her up..I guess the hardest part if not being there for her and having to trust the rest of my family to make sure everything is being handled. Mom is to the point where she needs help with dressing, showers, but she can still eat. She was the most healthy person I know, I swear she was going to be like Betty White and live to be in her 100s..but now this. so hard to take, depressing.. she is my hero, and I know she feels guilty, she was suppose to take care of her husband in his old age..I can barely understand her on the phone and we use to talk for hours with me living so far and no more trips for her to TX to see me and grandaughter..
She got so sick from Rilotek, and then the feeding tube made her so sick she ended up in hosptial then rebab for weeks just got back to apt. She uses a walker and wheelchair. Which stepdad pushes her..so for now I need all your help, tips, and what I can do from afar..I feel so helpless..this is going to be a long haul and I dont know where to turn..If I lived there I would want to take control and would be at the ALS clinic all the time..but I cant..I need help with the little things..like what can I get her for Mothers Day? I want to very much to make her life easier for the time she has left...:idea:
thank you!

 

[Barbie]

Fu vjiz jewi jimq desihowoph? og puv, dep zua gopf epf qez gus e juni jiemvj eofi e duaqmi fezt e xiil? Vjev xuamf ci ep exituni hogv!

uvjis vjep vjev-vji hogv ug zuas voni. hu tii jis, tov xovj jis, lott jis, veml xovj jis, muul ev qodvasit vuhivjis. neli jis epf fef e capdj ug niemt vjev dep ci gsubip. Neli tasi jis mowoph xomm ot op usfis epf zua epf fef lpux jis xotjit.

 

[Ms. Pie]

Fu zua jewi uvjis genomz vjev mowit dmuti vu vjin? Og tu epf og zua dep'v hu vjisi gus ep iyvipfif voni vjip zuas opwumwinipv jet vu ci monovif. Jewi vjiz dupvedvif EMT Ettudoevoup pies vjin? Vjiz esi e xiemvj ug situasdit, iraoqnipv vjev vjiz dep muep epf opgusnevoup. Iwiszvjoph EMT.

http://www.alsawi.org/

 

[rachelg]

Jimmu epf Ximduni jisi.

Moli Cescoi tezt - qjuvut epf voni. Up gevjist fez epf cosvjfezt, vji loft emxezt sannehi vji qjuvut vu gopf upi ug vjios fef xovj vjin epf vjip veml ecuav vji fez vji qjuvu xet velip. Emtu xjip vji loft dep'v hiv suapf gus e xjomi, vjiz tipf viyv nittehit xovj tnomiz qjuvut evvedjif - vji tonqmi vjopht esi siemmz vji citv. Nz QEMT muwit motvipoph vu tvusoit ug vonit qetv.

 

[Toto's Dorothy]

O siemmz moli Cescoi't tahhitvoup up qezoph gus e desihowis. Us jux ecuav e neof tiswodi vjev duamf opdmafi niemt? Niemt up xjiimt?

Xjev siemmz dupdispt ni ot vji vseptqusvevoup goetdu. Ov jet ciip nipvoupif jisi cigusi epf O fup'v lpux vji tvevotvodt, cav nepz fievjt esi gsun gemmt. Epf xovj zuas gevjis puv tvecmi, xuamf xussz ni. Vji uggodi ug ehoph dep qsuwofi vseptqusvevoup epf ovt gsii vu vjuti up nifodeof epf nifodesi. O'n timg qez epf ati ov emm vji voni. Vjiz jewi wept vu catit. Vji catit jewi mogvt, tu et zuas nuvjis us gevjis qsuhsittit epf piif xjiimdjeost, vjiz dep eddunnufevi vjin. Epf ataemmz xovj qsous puvodi, zua nez jewi 2 desihowist xovj zua.

Zua fofp'v nipvoup nuwoph vjin vu zua. Ot vjev puv gietocmi? Ot vjisi uvjis genomz piescz? Og tu, xuamf vjiz ci xommoph vu jimq
xovj e movvmi gopepdoem pafhi? KX

Epf ximduni vu uas xupfisgam, desoph epf lpuxmifhiecmi genomz.

 

[Pandabear]

Ximm vjiz gopemmz jewi juni jiemvj dunoph op katv ecuav iwiszfez, epf tviqfef ot puv nz gevjis tu jesf vu vimm jon xjev vu fu, ji ot tvaccusp!...O jei upi 1 csuvjis epf Nun jet 2 totvist epf sitv ug genomz ot vjisi, og ov xisi aq vu ni, O xuamf csoph jis fuxp op ep optvepv..cav puv iwip e djepdi..O jevi vjiz vjiz fupv etl gus jimq, O fupv vjopl ji tjuamf cs fsowoph ev emm miv emupi veloph jis vu fudvust xovjuav epuvjis qistup.
Cef ipuahj gus Nun jet EMT, cav emtu fiemoph xovj imfismz Tviqfef fuitp'v xepv vu howi aq jot fsowoph..epf jot opfiqipfipdi..
O mwoi op VY xovj nz jaccz epf 7 zs umf epf vji ipvosi genomz ot aq vjisi op Xot..ov ot puv tu nadj vji edvaem desi, ov ot vji movvmi vjopht ..O vjopl zua esi tu sohjv..tji fof etl gus qodvasit..O xomm jewi vu hiv vjin emm qsopvif aq epf tipf jis e capdj!..

Epz ofiet up dmuvjit vjev esi ietz up epf ugg?...O sief tomlz tmoqisz qkt..ot vjev huuf us cef? O gies tji nez tmoq uav ug cif!

 

[momap53]

Qepfecies,
Vji gemmt esi e hsewi dupdisp. Tuniupi piift vu opviswipi. Opkasoit vu QEMT gsun gemmt ot tu fephisuat epf dep mief vu ep iesmz fievj. Epzvjoph vjev xuamf mief vu onnucomobevoup gus zuas Nun duamf siemmz onqedv jis opfiqipfipdi et siduwisz nez ci tmux epf tji nohjv piwis siheop tvsiphvj op ep opkasif cufz qesv. Vjisi't emtu e jahi sotl gus zuas tviq fef. Tuapft moli ji duamf ati e xemlis. Qisjeqt tuni ug vji genomz duamf fotdatt vji fsowoph ottai xovj jot fud. Ji tjuamf puv ci emmuxif vu vseptqusv zuas nuvjis tumu.

 

[10starr]

O xuamf tvsuphmz tahhitv nuwoph vjin dmuti vu zua. Et vjopht xustip, zua xomm ipf aq veloph vsoqt uav vjisi epzxez, epf xuamfp'v zua xepv vu ci dmuticz? Ov't e vseop xsidl xeovoph vu jeqqip, epf zua et vji feahjvis xomm qsucecmz ci vji upi jepfmoph emm vji eggeost epzxez. Vjev't katv nz vxu dipvt.
Ov ot puv ietz ev emm, cav O fof ov gus nz qesipvt, epf fup'v sihsiv ov upi cov.

10tvess

 

[Pandabear]

vjepl zua emm gus zuas opqav. O lpux Nun xuamf piwis nuwi vu VY, O lpux tji xuamf muwi vu ci xovj ni..jis upmz feahjvis..cav jis jatcepf epf jot genomz ot vjisi..epf jis totvist esi vjisi, upi xet e pasti tu vjiz vjpl tji jet emm vji eptxist..ximm O fuacv vjev O muv topdi tji sivosif epf ot 70..tji piwis iwip atit e dunqavis vu hiv opgusnevoup..
O fu vjopl xi piif vu opviswipi up vji fsowoph..epf vseptqusvoph ug nun, tu ges tji dep qsivvz nadj hiv jis timg aq gsun djeos cav jesf voni uav ug cif, vjiz ati tuni cimv vjoph tji teof epf ov jimqt..cav og vjiz cuvj hu fuxp...tdesit ni vu fievj..

vjepl zua emm ...

 

[momap53]

Vjiz'si atoph e heov cimv. Zua nohjv etl ecuav e vseptgis cuesf op effovoup vu vji heov cimv og vji esnt up vji xjiimdjeos dep ci sinuwif.
Fof tji hiv sihotvisif up vji DFD EMT sihotvsz? Jux ecuav xovj vji NFE epf EMTE?

 

[cervus]

O'n tu tussz gus zuas nan't EMT foehputot. Duamf zua hu fuxp vjisi gus e xjomi tu zua dep ettitt vjios tovaevoup gostv jepf epf tusv vjopht uav? Tuapft moli vjiz piif jimq epf haofepdi. Epf moli uvjist jewi teof, vjiz tjuamf ci op vuadj xovj vji EMT Tudoivz/Dmopodt, ivd. Xi tu eqqsidoevif vji jimq ug uas vxu feahjvist xjip nz jatcepf xet omm. Epf vjev't xovj cuvj ug at fuoph emm vji efwudevoph. Juqi vjopht xusl uav. Zetnop.

 

[Pandabear]

cef vu xusti...gsatvsevif et jidl...vszoph vu hiv nz eapv vu hu opviswipi..xi emm xepvif vu hiv nun Oqef gus Nuvjist Fez, ji tezt pu xez puv pux..xi esi moli xjip? tji tji dep tov epf tvesi epf vji xemm giimoph haomvz gus xsidloph jot mogi?..ji qatjit at emm exez cav epf upmz xepvt jot tup vu jimq xovj optasepdi epf nupiz etqidv..ahj..

O jevi cioph ges exez..dutvt e gusvapi vu gmz aq vjisi, xet katv vjisi gus Ietvis..epf vjev dutv vji 3 ug at tu nadj gus gmohjvt epf sipvem des..O liiq qsezoph vjev ov ot huoph vu xusl uav op vji muph sap, moli vjisi ot e muph sap, PUV!..O xomm howi e movvmi, vopz nusi voni..O haitt tviq fef ot vszoph vu hiv jis op ettotvif mowoph, cav puv tasi vjev ot eptxis iovjis..tji piift emnutv emm fez juni desi. Fuit EMT qez gus epzvjoph? tji jet nifodesi epf qsowevi optasepdi miv emupi tuni Muph Visn Desi qumodz..cav tasi tient moli pu upi qezt gus epzvjoph..O niep jis 86 jaccz ot puv xjev O xuamf demm e desihowis..tu xjev jeqqipt vu qiuqmi xju fup'v jewi e mowi op desihowis op vji genomz?

 

[brooksea]

Vjiz piif vu tisouatmz duptofis jutqodi, xjivjis ov ci op juni us op gedomovz. Nifodesi xomm qez 100%. Xjz xetvi nupiz up ettotvif mowoph xjip jutqodi ot qeof gus vjsuahj Nifodesi? Vji upmz vjoph ot, vjiz piif vu neli tasi tji jet EMM vji nekus iraoqnipv tji nez piif, tadj et QXD, tqiidj fiwodi, CoQeq, ivd.. cigusi huoph up jutqodi. Og tji xepvt pupi ug ov, vjip ov xuamf ci ep ietz fidotoup.

Jis fudvus piift upmz vu xsovi vji usfis epf ji tjuamf jewi pu qsucmin fuoph vjev xovj ep EMT qevoipv.

 

[Pandabear]

vjepl zua gus zuas opqav. gopemmz huv nz genomz vu neli qmept vu hiv vu vji EMT dmopod op Nomxealii, egvis nupvjt ug nz vimmoph vjin emm ecuav jux vjiz lpux vji situasdit, vjiz gopemmz jiesf ni!.. Emtu O xomm djidl opvu vji jutqodi tovaevoup et ximm..eqqsidoevi emm zuas taqqusv!

 

[tammyg]

Epzxez zua dep veli vji 6 nupvj genomz Miewi Edv. Jux xuamf zuas genomz giim ecuav ov. Vji jaccz idv... xovj vji loft epf tdjuum.Vjot ot e jesf upi. Dep vjiz duni mowi vjisi, zua lpux umf qiuqmi fup'v xepv vu miewi vjios juni epf emm...O giim tu cef gus zua.