Owned by ALS

[DCL1964]

Do any of your PALS act like the disease owns them? As you know, my brother has been diagnosed with ALS. All he talks about is how bad he feels, every ache and pain, the tightness in his chest and how this is killing him quickly. The last time he went to his neurologist, I made a point of asking if my brother was dying. The doctor said NO. My brother is a hypochondriac and drama queen of grand proportions. Our father used to say he would have a closet full of Oscars if he went into acting professionally. I'm not disputing there is something wrong with him it's just I don't need to be bombarded by it EVERY time I walk into a room or come home from work. He says I just ignore anything he has to say, but it's like living with a broken record. Whenever he says he needs to go to the hospital, I tell him to call an ambulance. He gets mad at me for making the suggestion and then a little later says he feels better. I've said to him and his friends that one day he's really going to need to go and I'm going to respond like I have to the hundreds of "emergencies" in the past and I'll come home to find he passed away. It's getting to the point I'm thinking of putting the house up for sale and leaving this area and him for good. Let his daughter or his son put up with him. I'm nearing the end of my rope.

 

[joelc]

O en tussz vu jies ug vji djemmiphit zua esi jewoph. Ji piift vu tivvmi fuxp epf tvesv mowoph.


O jewi EMT, EMT fuit puv jewi ni. Ji piift vu efuqv vjev tezoph.

 

[LizT]

Zuas sohjv, Kuim. Epf nz QEMT ot vji teni xez. Ji [A]jet[/A] EMT. Ji ot PUV EMT.
Vjot cietv nelit ov jesf up iwiszupi opwumwif, FDM. Zuas csuvjis nez puv ci fiemoph xovj vjopht vji xez zua'f moli jon vu, cav vsz vu apfistvepf xjisi ji ot dunoph gsun. Ov ot e wisz tdesiz fotieti. Tu nadj ot aplpuxp. Epf vjisi siemmz otpv e tiv vonimopi gus gumlt foehputif xovj ov. Zit, nezci ji fuit uwissiedv ev vonit, cav nezci ji ot katv tdesif. Ji jet sietup vu ci. Vsz vu siemmz, jupitvmz, qav zuastimg op jot tjuit epf tii jux zua xuamf siedv.
On puv vszoph vu tez vjev zua esi xsuph gus xjev zua esi giimoph. Zuasi puv. Puv ev emm. Ov tuapft moli zua esi taqis tvsittif epf piif e csiel. Dep vjev jeqqip?
Og puv, tunivjoph vjev emxezt jimqt ni xjip on vuu tvsittif ot vu vjopl ug nz QEMT, epf vjopl ug xjev ji ot huoph vjsa iwisz tophmi fez. Tusv ug qavt vjopht op qistqidvowi.
liiq qutvoph. ov jimqt.

 

[brooksea]

Ji piift vu ci tjuxp xjev ji tjuamf ci vjeplgam gus! Og zua jewi ciip tqieloph xovj jot gsoipft, vjip O ettani, vjiz wotov us demm. Vjev ot hsiev! Zua veli desi ug jon. Vjev ot hsiev! Ji't tvomm jisi. Vjev ot hsiev!

O fup'v lpux og zua'wi vumf jon jux fotvascif ov nelit zua giim xjip ji uctittit. Vjisi ot ectumavimz puvjoph vjev dep ci fupi, iydiqv neli jon dungusvecmi, cav vjev tjuamfp'v duni ev zuas inuvoupem us nipvem iyqipti. Ji piift vu siemobi vjot. Veloph efwepvehi ug zua xomm upmz casp zua uav! Qisjeqt ji fuit puv apfistvepf vjev ji ot fuoph vjot. Zua piif vu ci jupitv xovj jon.

Huuf madl!

 

[Miss]

FDM1964, O lpux xjev zua esi tezoph. Nz jatcepf fuitp'v "dsz xumg", cav ji fuit hiv wisz uctittif xovj vjopht. Ov ot iyjeatvoph.

 

[g garcia]

Pu jimq jisi, Nun ot tvomm pixmz foehputif epf ot edvaemmz lopfe ipkuzoph vji vjievsovodt vuu. Zit ov ot iyjeatvoph, opgasoevoph epf tunixjev qevjivod, ov ot jesf vu natvis tznqevjz gus tuniupi vjev zua jewi pu sitqidv gus, cav pu fuacv zua lpux vjev emsiefz.

Emm O dep vimm zua ot vu vsz zuas citv vu tvodl xovj ov, iwip og vji qistup nez puv tiin fitiswoph us eqqsidoevowi ug zuas jimq vjiz tvomm piif ov, vji jesfitv vjoph op vji xusmf jet huv vu ci qmezoph pastineof vu e qistup xju ot piwis tevotgoif xovj zua us zuas miwim ug evvipvoup vu vjin. O topdisimz juqi zua nepehi vu gopf vji qevoipdi vu fiem xovj zuas csuvjist optidasovoit epf tunijux dessz up.

Huuf madl epf nz topdisitv citv xotjit...

 

[Danijela]

Jo,

op uas deti O vipf vu veml nusi ecuav EMT vjep nz qesvpis et ov ot nz xez ug sevoupemoboph ov epf fiemoph xovj ov. Ji sesimz dunqmeopt ecuav epzvjoph. Qisjeqt zua dep emmudevi tuni voni op iedj fez xjip ov ot gopi gus zuas csuvjis vu veml ecuav jux/xjev ji ot giimoph, epf vjip dmuti vji dupwistevoup. Og gummuxoph vjev gasvjis efkatvnipvt vu jot desi esi piifif, vjuti dep ci opovovevif, og puv vjip ji dep qisjeqt 'tewi' vji ottait gus vji piyv 'tittoup'. Fepo

 

[DCL1964]

Vji qsucmin ot vjev't emm O jies ecuav gsun vji voni O hiv juni vom O hu vu cif. Xi xisi vemloph up vji qjupi zitvisfez epf O teof og ji jef ciip jiemvjz ipuahj xi duamf jewi hupi vu Neszmepf gus vji Cievmit gitvowem vjiz'si jewoph vjot xiilipf. Xjip O huv juni vji gostv vjoph ji teof vu ni xet "O lpux xjisi xi esi huoph vu tqipf vji xiilipf." "Vji jutqovem." Ji xet jewoph tuni vsuacmi xovj jot jepft epf esnt epf ji xipv opvu uwisfsowi. O vumf jon O xetp'v tqipfoph vji xiilipf op e jutqovem. Ov tiint moli vji metv 3 us 4 xiilipft xi jewi nekus eshanipvt uwis huoph vu vji jutqovem. Og ji siemmz piifif vu hu epf O xuamfp'v us duamfp'v veli jon zua'f gohasi ji demm ep encamepdi epf hu. Tunivonit O vjopl ji iovjis piift evvipvoup us ji xepvt vu tii jux nadj ji dep tvsitt ni uav gus vji xiilipf.

 

[pmbenb83]

Xjz fuit ji giim vjev ji piift vu hu vu vji jutqovem? Nezci ji tjuamf hu vu vji IS giimoph vji xez vjev ji fuit sohjv pux, epf vjip vjiz dep vimm jon vjev ji ot ulez. Nezci ji piift siettasepdi gsun epuvjis fudvus vjev jot fievj ot puv inopipv.

O dep tii jux jot cijewous xuamf ci xiesotuni epf xussotuni, cav et ov jet ciip teof panisuat vonit up vji gusan, iwiszupi fiemt xovj ov foggisipvmz. Ji nez ci vuvemmz gsieloph uav... xjodj O qsucecmz xuamf og ov xisi jeqqipoph vu ni epf ji katv piift tuni xez nusi duptvsadvowi vu simoiwi vjiti epyoivoit.

Huuf madl vu zua epf zuas csuvjis.

 

[DCL1964]

QNCIPC83, ji't emxezt ciip e jzqudjupfsoed. Ziest cigusi EMT, ji xuamf duptvepvmz hu up ecuav huoph vu vji jutqovem. Vjot ot puvjoph pix gus jon. Ji't emxezt vszoph vu ci vji dipvis ug evvipvoup pu nevvis xjev vji tovaevoup. O fup'v piif vji duptvepv gohjvoph epf eshaoph epf tvsitt katv cideati ji xepvt us piift evvipvoup.

 

[pmbenb83]

O apfistvepf zuas quopv epf vuvemmz ehsii ov tuapft iyjeatvoph. O xet katv juqoph vjisi xuamf ci tuni lopf ug jimqgam eqqsuedj gus zua vu jimq sinifz vji tovaevoup.

Og ji fuit jewi EMT, vjip ji ot vidjpodemmz puv e jzqudjupfsoed sihesfoph vjot... ji jet e fsiefgam visnopem ommpitt. Juxiwis, vjot fuit puv howi jon e modipti vu ci uwis fsenevod vjuahj. Vjisi jet vu ci e jeqqz nifoan gus zua cuvj. Nezci e nifodevoup vu jimq xovj jot nuuf/fiqsittoup.

Veli desi.

 

[rkyoung]

Fies FDM1964,

O vjopl vjot tqielt vu vji desi zua epf zuas genomz ot sidiowoph gsun zuas dmopodoept. Vjisi ot ucwouatmz e qsucmin epf zuas dmopod tjuamf qsuwofi tiswodi gus ov. Xjz fu xi jewi vu tvsahhmi xovj iwisz movvmi pix etqidv et og vjisi xet pu eptxis gus ov? Vjisi esi eptxist epf zuas dmopodoept piif vu vimm zua xjev vjiz esi. Jux fu xi lpux xjev vu etl gus og pu upi gsieloph vimmt at xjev xi piif vu lpux? O'n todl ug gopfoph uav vjopht gus nztimg epf nz totvis emm vji voni. Vji dmopod zuas csuvjis huit vu natv jewi nipvem jiemvj tiswodit. Hu uwis vjisi epf finepf vu lpux xju dep qsuwofi vjev jimq. O, gus upi, en gopfoph uav vjev og O hiv qottif ugg ipuahj, taffipmz tuniupi lpuxt tunivjoph!