View Single Post
Old 11-13-2004, 12:45 PM #1 (permalink)
DebbieD's Avatar
DebbieD DebbieD is offline
New Member
 
Join Date: 2003
Posts: 68
DebbieD is an unknown quantity at this point
DebbieD DebbieD is offline
New Member
DebbieD's Avatar
Join Date: 2003
Posts: 68
DebbieD is an unknown quantity at this point
Default Recently Diagnosed; Familial ALS

hi all!

i was posting last year before my mom passed away in january this year. she had als as well as her brother and her cousin.

i was diagnosed last month with very early onset of als. i had an mri test and i have no nerve damage. however my doctor at sunnybrook feels that i do have als and has prescribed me riluzole.

i started noticing slurring problems after i'd had a couple of alcohol drinks in the summer. then i noticed i was having trouble with speech even without a drink. i was lucky that i didn't have to go through months of testing and ruling things out. my mother's doctor saw me 4 days after i e-mailed him and set me up with the mri right away.


i'm going to be involved in a stemcell research program at sunnybrook. my doctor has got full funding and needs 5 volunteers and someone to head the study. i'm volunteer number 4. this is not embryonic stem cells. the stemcells come from our own bodies.

i'm a very "up" kind of person and i'm not at all depressed about this diagnosis. i have to keep reasuring my father and my family that i'm okay.

i'm 47 married for the second time to the most wonderful man, dave. we have 5 kids altogether all grown, but 2 still living at home. we also have 3 granddaughters.

i've always thought that this site was wonderful and all the people who post too!
DebbieD is offline