Kristina1
Senior member
- Joined
- Jan 26, 2017
- Messages
- 822
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- MA
- City
- Grafton
My weight has been steadily dropping, and I was re-assessed by the nutritionist regarding my tube supplementation. I was supplementing about one carton per day, and she said she wanted me to gain 10-20 lbs, and changed my prescription to 4.5 cartons per day. Part of the reason for the massive volume is I insisted on sticking with Kate Farms, which I like because it has real ingredients not just corn syrup. But it is a 1.0 formula, not 1.5 or 2.0.
I was 100 lbs the first day. I did the 4.5 cartons but the massive increase in volume made me feel very sick to my stomach and I couldn't manage to eat anything by mouth in addition to it. But the next morning my weight had gone up to 102. But I just couldn't do that much again so I only did 3 cartons that day plus food by mouth. The last three days I have done the same, 3 cartons, plus some food by mouth. But my weight is just stable, not up, not down. Just 102.
I feel I'm at my limit and my poor stomach is always full because in addition to the formula and food, I have a 2x daily medication mixed with 8oz water, plus I do metamucil mixed with water. It's like all day long something is going in.
Does anyone have any advice? I feel overwhelmed and frustrated.
I was 100 lbs the first day. I did the 4.5 cartons but the massive increase in volume made me feel very sick to my stomach and I couldn't manage to eat anything by mouth in addition to it. But the next morning my weight had gone up to 102. But I just couldn't do that much again so I only did 3 cartons that day plus food by mouth. The last three days I have done the same, 3 cartons, plus some food by mouth. But my weight is just stable, not up, not down. Just 102.
I feel I'm at my limit and my poor stomach is always full because in addition to the formula and food, I have a 2x daily medication mixed with 8oz water, plus I do metamucil mixed with water. It's like all day long something is going in.
Does anyone have any advice? I feel overwhelmed and frustrated.