Update; a minor note, I did have MRI's, my previous comments were in error.
Presently I still only have lower motor neuron symptoms. I learn from the specialist at the university that some scattered over the nation sort of conferring group she participates in believes I have ALS, not because I have upper symptoms, but that I will likely get them.
I ask if there are people who only ever get lower, she says.... sure! So, I don't get the compulsion to say I will. Demographics, she says, and my age [62]. She also says she does not know.
My symptoms are odd to her in one respect. In the morning I feel bad; low energy, unsteady, poorer walking gait, low vigor. As the day goes on [I work full time], usually about 12-2 PM, I really get a lot better. More steady, more energy, more strength, more vigor. I am advised that is the opposite of most motor neuron or ALS folks. She is puzzled by that. Do you have thoughts on that?
I am referred by the university to Mayo, as they are out of ideas. That appointment has been made, it is in January. I am also set up to see a Lyme clinic in another state in March.
I got a brace for my foot today, it is for the drop foot. It is very effective.
This is what I know just now.
I just now realize I need yet to get the results from the electrical tests. What form should they take so the person or people here can examine them?