View Single Post
Old 10-23-2010, 12:10 PM #8 (permalink)
tmasters tmasters is offline
Senior Member
 
Join Date: 2008
City: Anaheim
State: California
Country: US
Diagnosed: 08/2008
Interest: I have been diagnosed with ALS.
Posts: 531
tmasters is on a distinguished road
tmasters tmasters is offline
Senior Member
Join Date: 2008
City: Anaheim
State: California
Country: US
Diagnosed: 08/2008
Interest: I have been diagnosed with ALS.
Posts: 531
tmasters is on a distinguished road
Default Re: BiPAP woes, and what I've learned.

Diane,

Sorry for what you have been through on this. I can't imagine the horror in not having breathing assist when you need it to sleep, especially when you're getting the run-around and no firm end date to the misery.

But I thank you for posting this. This is very timely for me, as I will go on BiPAP soon, and there are similarities in my case:
- My prescription states the reason as apnea
- I'm on private health insurance currently, an HMO program
- I'm switching to Medicare soon (at the end of this year)

Since I'm on an HMO I'm not sure how much say I'm going to have in it, but I'm going to push the RT for a solution that is right for ALS, not just for apnea. Some people in my ALS Association support group mention the Respironics ST but also the Trilogy as a better solution. Who makes your AVAP? Do you know if the Trilogy is an AVAP?

-Tom
tmasters is offline