kljack16
Active member
- Joined
- Sep 18, 2020
- Messages
- 46
- Reason
- Lost a loved one
- Diagnosis
- 08/2020
- Country
- US
- State
- MS
- City
- Starkville
Hi - general question. Once my husband was diagnosed with ALS, numerous friends and family members send all sorts of “miracle cure” posts, ideas, suggestions.
How do you deal with this? It makes me really angry in one sense. I don’t have spare time to do the research they didn’t bother doing, but some part of me holds out the slightest bit of hope; so I look only to be disappointed again. In another sense, I try to appreciate their efforts. I know their intentions are good.
How do you tell them to do the research first or don’t be so gullible? How do you tell them you can’t be responsible for THEIR hopes and wishes they could do SOMETHING? That you don’t need anymore drama or responsibilities?
Sorry - I just get very frustrated and needed to vent, but I would also appreciate any guidance on how to handle these situations.
Take special care.
Kelli
How do you deal with this? It makes me really angry in one sense. I don’t have spare time to do the research they didn’t bother doing, but some part of me holds out the slightest bit of hope; so I look only to be disappointed again. In another sense, I try to appreciate their efforts. I know their intentions are good.
How do you tell them to do the research first or don’t be so gullible? How do you tell them you can’t be responsible for THEIR hopes and wishes they could do SOMETHING? That you don’t need anymore drama or responsibilities?
Sorry - I just get very frustrated and needed to vent, but I would also appreciate any guidance on how to handle these situations.
Take special care.
Kelli