azlat
New member
- Joined
- Feb 1, 2018
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- IL
- City
- Chicago
My mom is 71. She has had one emg that said cipd but no other results showing inflammation. Two more emgs suggesting als. We finally met with a dr that felt ivig is worth a shot since some of her symptoms are atypical for als (burning and tingling in her legs past three years, hand symptoms started 21 months ago which seems like a slow progression bc she is still using them). My question is - how hopeful can we be that ivig will disprove an als diagnosis? Did many of you have this scenario (diagnosed als and then disproved it with trial of ivig)? Thanks for any advice. We are nervous and devastated.