Sleep stats, and other questions

[moosey]

My throat issues started roughly 10 months ago (previous threads here and here), it has been slowly migrating from upper throat to lower throat slowly. I have only experienced minor dysphagia, and no persistent dysarthia. The best description i can provide is a section of my throat has constantly been tight and paralyzed, migrating downwards. Other strange things like toothpaste out my nostrils and air getting down in my esophagus have been happening.

Twitching doesn't worry me as much, it has increased but nothing persistent. Just hot spots that last a few days and go away in my legs and arms/hands

My clinicals showed no neurological signs and ncs was normal. I'm scheduled for a follow up with the Neurologist in July.

My legs/wrists/ankles are having the most issues beyond my throat. Everything has been mostly bilateral.

I have sleep apnea, and wear a cpap. It's been effective in reducing my events from 65 per hour to just a few. I invested in a Samsung ring to do sleep tracking and posting results here to see of anyone has any opinions or insights.

Is it highly unlikely my swallowing issues are related to ALS if I have not developed any dysarthia or significant dysphagia in 10 months? My throat muscles are absolutely not working properly, but functionally they're not failing.

If it's not, what the heck could it be?

 

[ShiftKicker]

That would be a question to ask your doctor or ENT. You would be better served to take this info that you have collected and speak with someone who can examine you and who can sit and discuss such things as getting a sleep study, etc. This forum can not be used for general medical questions, nor used for non-ALS breathing issues. This honestly is not the place and you would get way better care from a medical professional. While we understand how frustrating it is to not have immediate answers, asking folk with ALS about things not related to ALS is not a great use of your time, nor our resources.

I am closing this thread as this is not ALS specific. We encourage you to work with your doctor and not focus on ALS/MND.