jennyinfrance
Active member
- Joined
- Feb 12, 2015
- Messages
- 45
- Reason
- PALS
- Diagnosis
- 06/2013
- Country
- FR
- State
- Dordogne
- City
- Savignac Ledrier
Hi Pat, Sorry it's taken me so long to reply. Yes I have been on RCH4 for 6 months now and haven't deteriorated. Unfortunately, my secretions haven't lessened but I am coping with them better now. I used to be self-conscious about using the suction pump in public but I don't care now. Apart from my Medela pump, I have a portable one which goes with me everywhere. I have tried everything but nothing works. I have a PALS friend who is going to have radiation treatment on the salivary glands so will wait and see whether it works for him. Jenny