Bry2k200
Member
- Joined
- Jun 22, 2022
- Messages
- 12
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- CA
- State
- MB
- City
- Portage La Prairie
I have a question regarding the C9 mutation that wasn't answered in the Familial ALS FAQ section. My mother passed away last year from the "devil's disease" and tested positive for the C9 gene. I completed genetic testing and I was fortunate not to have the mutation. My sister was too afraid to get testing done and wanted me to go first. She's now going for testing and I'm very worried. Is it likely she won't have the gene if I don't have it or does this not mean anything at all?
P.S. I effen hate this disease, it took my mother from me far too soon and I hope they find a cure tomorrow for each and every one of you.
P.S. I effen hate this disease, it took my mother from me far too soon and I hope they find a cure tomorrow for each and every one of you.