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  1. affected

    Could they be missing it?

    let us know what your neurologist says. it could indicate something like GBS which is treatable
  2. affected

    Hand motor skills deteriorating for months, now muscles twitching. EMG shows nerve damage. What is this?!

    Great results! I hope you will believe them and let this go. If you had bulbar issues you would be told something quite different than what has been said. If you get caught up in fears again, return immediately to your doctor, not to the internet. Something I've learned is that you can prove...
  3. affected

    21/02/2023

    thanks for clarifying, as noted NCS would be normal with ALS. Chase it up as it is likely something that can be treated.
  4. affected

    Concern for bulbar onset

    Sounds like you are making great progress on your mental health. Please do come back after April 3 and fill us in.
  5. affected

    Im so worried this could be ALS?

    Definitely always see your doctor with concerns rather than the internet. I don't see ALS in anything you have happening.
  6. affected

    Just another rant

    being able to vent out how you feel is really important! Life can throw huge suck crap at us for sure. It is valid to be angry about that so I totally hear you.
  7. affected

    First visit to a Pulmonologist in a few days

    Tomswife what did the pulmonologist say about a cough assist?
  8. affected

    Hand motor skills deteriorating for months, now muscles twitching. EMG shows nerve damage. What is this?!

    Definitely be sure to post the Summary/Conclusion with the report so we can comment accurately.
  9. affected

    Could this be ALS?

    Fantastic - that is what we like to call a 'clean EMG' so far as ALS.
  10. affected

    21/02/2023

    Hi Sam You didn't actually ask a question. I gather you are worried you have ALS. It sounds like they have a working diagnosis that has nothing to do with ALS. Work with your doctors, and make sure you reach out to them about your deep concerns and get things cleared up.
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