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    Qualifying for hospice with a vent?

    Hello- My PALS recently decided that he would like to use a non-invasive ventilator. Does this mean that he does not meet the criteria to qualify for hospice? Standards seem to vary so widely. It is very confusing. Pam
  2. P

    Who to talk to about legal issue WRT ventilation

    Hello- I live in New York state. I have questions regarding the legality of withdrawing someone from a ventilator. My father-in-law has rapidly progressing PBP. He is starting to have breathing issues. He is trying to decide if he wants a ventilator. I want him to be able to make his...
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    Caring for a caregiver?

    Hello- My mother-in-law is the primary caregiver for my father-in-law who was diagnosed with PBP/ALS in January 2010. My husand and I live 4 hours away and travel to see them frequently. When we are there, I always try to find ways to help her out. Laundry, cleaning, food shopping, yard...
    • pamdemonium
    • Thread
    • als caregiver caregivers diagnosed father food hours love pbp support travel work
    • Replies: 7
    • Forum: Current caregivers
  4. P

    My PALS does not want to use his eyemax

    Hello- My father-in-Law received his Eyemax a few weeks ago. It is all set up and we have worked with him to make sure that it is properly configured for him. After practicing for a while, he got tired so we took a break. Several times over the course of that weekend, I asked him if he wanted...
  5. P

    What to do about a PALS panic attacks

    Good Morning! I am just back from a visit with my PALS (my father-in-law). He is almost completely locked in now but his breathing has yet to be measureably impacted. I was talking with my mother-in-law and she said that he has had a couple of panic attacks where he believes that he cannot...
  6. P

    the benefits of a tracheostomy without a ventilator?

    We were talking about my father-in-law's wishes regarding his treatment. My mother-in-law (who is a nurse and his primary care giver), said that my FIL does not want a trach/ventilator. She lumped them together like you could not have one without the other. Is it possible to have a trach...
  7. P

    PALS has insomnia

    Hello My father-in-law is in the advanced stages of PBP-onset ALS. He cannot talk or use his hands or feet at all. We are waiting for the arrival of an eye-max for him but in the meantime we are having a very difficult time communicating with him. My mother-in-law takes care of him evenings...
  8. P

    How to ask about the trach/vent decision

    Hello- My Father-in-Law is a PALS. It seems to be moving along very quickly. I do not know if he and my Mother-in-Law have had any discussions about his wishes with regards to having a trach or being ventilated. I don't know if it is appropriate for my husband to ask his parents about this...
  9. P

    How do you celebrate Thanksgiving?

    Hello- My Father-in-law's symptoms are progressing rapidly. He is now taking in sustenance only from his feeding tube. It seems inappropriate to have the focus of our Thanksgiving celebration to be a meal in which my Father-in-law will not be able to partake. I am fairly certain that this...
  10. P

    Transitioning to a hospital bed....

    Hello- You all are so wise on these boards. I just know you will have some insight for me. My father-in-law was diagnosed with ALS (bulbar onset) in February of 2010. His symptoms have progressed steadily and the time has come for him to transition into a hospital bed. The bed is arriving...
    • pamdemonium
    • Thread
    • age als bed bulbar bulbar onset caregivers diagnosed father love onset sad support symptoms
    • Replies: 10
    • Forum: Current caregivers
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