Recent content by Robb

  1. R

    Back on here after a long time

    I understand what you mean and as I’ve written in my various post I have seeked proper medical attention and visited doctors regarding my issues, in fact I went to the pulmonary doctor today regarding my sleep study , he bluntly told me the same thing they told me previously that the test will...
  2. R

    Back on here after a long time

    My apologies guys, didn't mean to sound pushy or rude, completely understand Laurie's point, as she mentioned before nothing ive said so far points to me feeling the need to visit a neuro again especially in regards to neuromuscular issues and a sleep apnea test would probably be the most...
  3. R

    Back on here after a long time

    Thanks for your quick reply lgelb, duly noted regarding the sleep apnea and i already made an appointment to go see the lung specialist to order one, so basically in your opinion this has nothing to do with a MND or actual weakness, but could be due to that fact that im not getting enough sleep...
  4. R

    Back on here after a long time

    Hey All, Sorry for prolonging this thread however got one last question that i forgot to ask earlier. I noticed that when sometimes i talk too much or long i start to get a lightheaded and sometimes feel a bit numb in my fingers, a little breathless as well, also my cough might be getting...
  5. R

    Back on here after a long time

    Thanks alot everyone, alot of valuable information and good advice, Clearwater Al Bangkok is still as crazy as it was back in the day however i try to stay clear of all that madness :) I will honestly try my best to move on from this, even last night i had a very rough night as everytime i...
  6. R

    Back on here after a long time

    Thanks for your replies, it really mean a lot that you took out time to address my concerns, so basically it all comes down to GERD then, in your opinion all my symptoms could be explained by GERD ? Honestly speaking im tired of going to the doctors, ive been to too many and its not helping in...
  7. R

    Back on here after a long time

    in case i never mentioned this before im 34 years old, no history of any ALS in my family , still have twitching issues, especially on my left side ( bicep, elbow, arm, and leg ) but on other areas of my body as well including inside my body such as my chest, stomach, throat etc, spasms as well...
  8. R

    Back on here after a long time

    Hi All, My last post on here was almost 2 years ago, about the time i was having my 4th EMG, which came out clear of any serious issues, i wont lie and say everything went back to normal after that, i did have my bouts of weakness, twitching, new symptoms etc etc but since September 2017 ive...
    • Robb
    • Thread
    • als do i have it back breathing coughing eating emg family fasciculations food ice meds mnd muscles nose pressure reading steroids stress swallowing swallowing issues symptoms test tongue twitching voice weakness worried wrong
    • Replies: 17
    • Forum: Could this be ALS?
  9. R

    Going in for a 4th EMG

    Dear all, Hopefully this is my last time on here but before I sign off I just wanted to share my results with some of you who are going thru similar problems, firstly my problems have been so broad and severe and has affected my whole body which included twitching, weakness, swollowing issues...
  10. R

    Going in for a 4th EMG

    Hi guys, Been on here a few times and unfortunately back one more time however im scheduled to go in for a 4th Emg tomorrow over a span of almost 2 years the first emg i did was in aug 2014 and the last one was in november 2015, first 3 didnt find anything that would suggest a motor neuron...
    • Robb
    • Thread
    • advice als atrophy back diagnosed diagnosis emg ice motor neuron disease twitching weakness
    • Replies: 2
    • Forum: Could this be ALS?
  11. R

    Developing new issues

    Thanks for your reply nikki, the last neuro i went to did a physical examination on me and said he still didn't see any obvious signs that i could have an MND as my strength was alright and reflexes were not brisk and seemed ok, but the issues i brought up earlier are quite hard to explain to...
  12. R

    Developing new issues

    thanks and yeah the conflicting information is definitely one of the factors that plays into our fears , in regards to the 10 emgs i met a lady at the hospital during one of my check ups, she told me she had around 10 done in a span of 3-4 years and they finally told her it was Als when her...
  13. R

    Developing new issues

    Hi Atsugi, thanks for your reply, im well aware of that and have followed everyones advice on here for many months now and kept away but unfortunately the symptoms i have now are even more puzzling then before, my left hand and arm have definitely got weaker but not in the sense that i have...
  14. R

    Developing new issues

    Well most of them have the wait and see approach, last year one doc suggested fibromyalgia another doc said it could be due to sleep apnea and the body isn't getting enough rest due to that, unfortunately nothing conclusive. The Emg guy just keeps telling me to check every 6 months, honestly...
  15. R

    Developing new issues

    Thanks for your reply Nuts, the doc said i had to monitor it and if it got worse i might need surgery to correct it, but when i went for a second opinion the other doc said its probably best to leave it and try to heal itself, the main thing they check for is atrophy and strength my left hand...
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