Recent content by Luesco24

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    Edaravone APPROVED in US!!!

    It comes with a price $145,000 a year. 30% slow down the disease like Rilutek. It will be nice for new diagnosed if they can afford it.
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    Edaravone

    FDA already approved it comes with a price, about $145,000 a year. How many of us can afford this treatment.
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    Bipap

    Thank you, 5"6" never smoking, never a drinker, Never in the hospital until I got this. I going to try the setting.
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    Bipap

    Height 5.6, Weight 169 pounds keeping steady. Most of the weight stays in my belly, kind of wonder if it I is bad for my diaphragm. Eat high calorie diet and it give me extra energy. Thank you, amazing you answer so fast.
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    Bipap

    Last breathing test was done last month and No Dyspnea during the day, Orthopnea at night. Machine is Trilogy 100 with humidifier and mask that cover nose and mouth. It was setup according to Doctor prescription. Any help you can give me. Appreciate. Dual prescription -off Mode - Avaps-AE...
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    Bipap

    Yes I need your expertize I am going to see what kind of settings and the kind of machine I have. You are right about I get tired just to dress, can do no work at home anymore, still can do most of my personal hygiene get tired just to do that but still can do it. I would like to use the Bipap...
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    Bipap

    I am using the mask that cover nose and mouth, I am going to check the setting because sometimes when I am exhaling the machine goes the opposite and try to push air.
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    Bipap

    Just got a Bipap machine, when I go to try to sleep breathing get difficult. Daytime breathing is good, have 68%. Question is I read that I am suppose to start using the Bipap machine when my breathing gets under 50%. It was setup according to my breathing height and weight. Been trying for...
  9. L

    Weak right foot and arm

    i have ALS I started having cramps in my right leg in 2015 and crying bouts for no reason even just listening to music, March 2015 I started limping and my right leg was so weak, working got difficult started walking normal after a few steps limping again. When to primary care doctor explained...
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    Diagnosed in January

    Hi Dave I live in NC too. I eat what I want with high calories, proteins. I was diagnosed September of last year I lost a lot muscle density but my wait remains the same(big belly). But it is true first thing Doctor tell you don't loose wait. With exercise be careful I learned the hard way doing...
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    Baclofen

    Thank you. I guess it wasn't good for me, reduced my cramps but my muscles were so relaxed that I could not walk, could not eat much and my breathing was difficult My Neurologist is a specialist in ALS. He prescribed Mexiletine is in study and is working great for me control my cramps. I am glad...
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    Baclofen

    First visit to Neurologist she did a strength exam and I failed, at the time I had a lot cramps so she prescribed Baclofen twice a day. Had to wait a month for the EMG. Started taking the Baclofen within 3 weeks I started to feel so weak. Next appointment with the EMG Test. After a week the...
    • Luesco24
    • Thread
    • als baclofen breathing cramps depression early eating emg medicine muscles neurologist second opinion stages test wanted
    • Replies: 3
    • Forum: People with ALS (PALS)
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    Possible Bulbar ALS?

    It took for me almost a year to get diagnosed, mine started on my right leg with cramps and weakness and twitching all over my body. When finally I was send with a neurologist, it took two weeks to get diagnosed, First strength test I failed, then it came the EMG was positive. This test will...
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    New to this forum

    Thank you I know you have a lot of knowledge. Looking fwd.
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    New to this forum

    Hello my name is Luis, just starting in this forum because I am fighting this terrible disease. Diagnosed September 2016. It took almost 1 year just to find out about this. Doctor told me I have 3 years But I live one day a at time, tomorrow is not guarantee. Enjoy each day while I can. I like...
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