Recent content by hunterross258

Hi! Been a while since I've posted here, but I have a story that many people can relate to when it comes to panicking/getting anxiety towards ALS due to symptoms. For me, it all started back in October 2014. I noticed some twitching in my right arm, looked on the internet and automatically...

As a former DIHALS who went through this panic as well around the same age as now (I'm now 31, symptoms began late 2014), the best advice I can give you is to not let the anxiety consume you. I saw a handful of doctors, from neuros to orthopedics and got EMGs, a spinal tap and countless MRI's. I...

Clearwater AL - you especially were active on here when i was at my craziest. I thank you for being patient and hope that you are doing well.

Hi! Been a while since I've posted here, but I have a story that many people can relate to when it comes to panicking/getting anxiety towards ALS due to symptoms. For me, it all started back in October 2014. I noticed some twitching in my right arm, looked on the internet and automatically...

I know as someone who doesn't actually have ALS i shouldn't be posting, but I wanted to chime in since I had noises at rest and did not end up with it. I was nervous for all three of my EMGs and there was noise at rest and when I moved the muscle. From what I gather, the EMG tech or doctor can...

Hey everyone, I haven't posted here in a while. About a year ago, I began to have symptoms that concerned me about ALS. After going through the battery of tests...EMGs, spinal tap, blood tests, Dr. Glass at Emory diagnosed me with Parsonage-Turner Syndrome. I have atrophy in my dominant hand...

Sorry, big weekend ahead at work. No change in strength, reflexes or anything. Dr. Glass thinks that I, at one point, had Parsonage-Turner or a Brachial Plexus injury and my lingering symptoms are from that. Eventually, he believes it will go away since it hasn't progressed clinically since my...

Hey everyone - I had posted a few months ago, March to be exact, regarding my visit to Dr. Glass at Emory. I came away with a preliminary diagnosis of Parsonage-Turner Syndrome or Idiopathic Brachial Neuritis. My follow-up is in a little under two weeks and I am really level headed, unlike I...

That is something I would love to know. I have had widespread fasiculations since October 2014 and I have noted atrophy in my intrinsic hand muscles and my forearm flexors on my left arm/hand. On my January EMG, it picked up just chronic denervation in a few muscles, primarily in the c7-c8...

Yeah, since my symptoms have begun in Sept, the atrophy in my arm is still just limited to my thumb base and my forearm flexor. I have twitching all over...it isnt all the time, but i mean it happens pretty often, most commonly in my left tricep and calf muscles. I can still do all of my tasks...

Kinda. I went to the Emory ALS clinic on March 2nd and saw Dr. Glass, one of the best in the country. He and one of the neuromuscular fellows examined me and gave me a preliminary diagnosis of idiopathic brachial neuritis, otherwise known as Parsonage-Turner Syndrome. It normally remains...

Sorry to hear about this. How old is he?

Hey Tillie - I hope you are well. I am dealing with some issues. Saw an ALS specialist in beginning of March. He didn't think it was ALS and I was very happy. Since then, my issues have moved bilateral to my right arm. Tried calling/emailing my doc to see what he thought, but he said he'd answer...

I had noticed that your post to others about EMG's has changed from ALS being a disease of widespread acute & chronic denervation to being one of acute denervation and chronic reinnervation or acute denervation, chronic denervation with reinnervation. Which is it? Haha.

Hey Erin! I just wanted to say that if you needed anyone to speak with regarding your diagnositic process, I'm here. I am kind of in the same boat, though I had a tentative diagnosis of something called Parsonage-Turner Syndrome, which is actual more rare than ALS. I have been symptomatic since...