Recent content by Cherry

Pour hot water on lettuce leaves then drink it. A nurse told me it aids sleep. Lettuce is supposed to break up mucus too. My best wishes, Cherry.

My husband gets pain in his arms, neck, throat, shoulders and legs. Was prescribed patches the other day, but when he read the side affects it stated they weren't to be used if there were any breathing problems! Thanks doc. DX, Sept 2009 P.B.P A.L.S.

Hi Dani, my hubby has been offered N.I.V. when he needs it. He hasn't had the snip sniff test and we've no idea what his F.V.C. is at the moment but he finds it hard to cough or sniff. I've mentioned (several times) the 'T' word tracheostomy and have been told he won't be refused. Hope they keep...

Any connection here? Husband has P.B.P./A.L.S. son has M.E. and hubby's first cousin Lupus.

I read with interest on the A.L.S.T.D.I. forum about the possible connection of hammer toes and other boney abnormalities of the feet and A.L.S.. There was some research conducted years ago, but think it must have stopped. My hubby has hammer toes, one on each foot, and the bones of his feet are...

Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...

My husband was diagnosed as having both p.b.p and A.L.S. in September. The trouble was we can't be sure when it all started as the throat problems, swallowing, pain, were being masked as he'd had throat Cancer. He also has radiation damage of the Larynx. His limbs are getting weaker with a...

Peace to your family too Dave and I hope you get all the help you need and deserve. Love, Cherry.

Thanks for that. It's just that I didn't get any replies from the emails I've sent, and I expect the clinic in Paris don't want to give me any information on any other clinics. I shall have to ask at the M.N.D. clinic when we go in January about the possibility of getting one in the U.K. I want...

No replies again. Think I'll start singing 'No reply' by The Beatles. Cherry.

Does anyone have information on diaphragm pacers in the u.k.? I emailed the clinic in Paris, but they didn't reply! I know of a hospital in Sheffield who are trying to raise money for them, but they too haven't answered my emails. Getting one on the N.H.S. is probably not an option, but I think...

Yes, that's the one. I did find it, and posted it, but it's not been put on the forum. Thanks BarryG.

Whoops, sorry silly me! I'll see if I can find the site I went on in history. Luv, Cherry. X

I found it on the internet. Luv, Cherry.

Just saw this: Neurotoxic heavy metal can slow the progression of Lou Gehrig's disease 1. December 2009 00:36 New discoveries have been made about how an elevated level of lead, which is a neurotoxic heavy metal, can slow the progression of amyotrophic lateral sclerosis, or Lou Gehrig's...