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one more time...a careful reading of all posts reveals no one has advocated concealing information from a doctor...nor is anyone criticizing suggestions of being open with a doctor. Sigh.

After I quit banging my head on the wall, I am off to enjoy a gorgeous day. I hope everyone here has a sunny and mildly warm day!
 
Oh, how I hate dissention. In my own situation, upsets like this make my legs and arms shakey yet stiff and I walk like the Tin man. It makes my grandchildren laugh. I think that the cortisol that rushes through the body when emotions are high have much more effect on the muscles than we realize. Happily, I am able to keep my life free of strife most of the time. And hearing the laughter of a child is surely the best medicine,eh?

I think most folks understood my intention in advising Andy that his procedure would be safe regardless. And I think most folks know that while I am not an anaesthesiologist, I am not really one of the hounds of h*ll.

Perhaps I don't appreciate the value of this forum as a tool for releasing the pent up anger that bubbles beneath the surface in some lives. In that case I proudly wear the T-shirt with the target on my back.

Maybe I'll even put some magnets in my shoes!
 
I've been away from the forum quite a bit lately, and just hate coming back to find this kind of discord. It makes me not want to read through the other longer threads besides this one, because I don't want to stumble across more of the same. So, let's put me down as another person who finds dissension of this type to be damaging.

Remember how completely wrong the old childhood adage is - "Sticks and stones may break my bones, but words can never hurt me"... Still not true for us as adults, is it?

We have many members who are willing to go out of their way, and invest much of their time contributing to this forum. What motivates a person to do so could stem from reasons as varied as the backgrounds we come from. We also have different fields of interest, varying levels of education, varying levels of tolerance, varying levels of sense of humor, etc. etc. etc.

What IMO matters, is that what we say is expressed in a manner that considers others feelings. This is, after all, first and foremost a support forum.

We don't need to prove how qualified we are, or how much we know, because, again, we're members of a support forum. This is not "Ask the Professional" where members speak from a position of authority. Regardless of our background, here, we are all lay people, and what is needed from all is a genuine desire to befriend those in need of support. When we come on here, we take off whatever credentials we might wear, we express as lay people, what we have experienced, what we know to be true in our own lives, how we feel about something, what we think we would do if we were confronted with certain circumstances, or, what we have done.

I know, for myself, I most appreciate when members advise from personal experience. I might or might not always appreciate the delivery method, but I do learn, and sometimes just file things away mentally for future use. And, I can say that I have learned from so many, many here.

That is not to say that we can't share what we've read, or have been taught, but, what holds the most weight is the personal perspective, the support, and willingness to befriend.

Its also always beneficial to remember that this forum does have a private message function, and it is a wonderful method of communication. There is a greater good that overrides the importance of being perceived as being correct, or knowing the most.

I had to laugh at the "irony" sidebar, only because this past year I have gotten sucked in to watching TV's Castle - a major guilty pleasure for me. I've now watched every episode since the start, and have the DVR set to record new ones. Anyway, the protagonist is a novelist, who in several episodes zeros in on the incorrect use of the word by other characters. Really really funny (to me).

As for one of the questions posed by Andy... I think the prospect of any type or level of anesthesia makes many people uneasy. Its not something people in general are that comfortable with, unless, perhaps they've had it enough times to where its no big deal.

And, even then, if that person was concerned about underlying medical conditions, it would make sense that they would ask about it here. I think, if I were going to be undergoing the procedure he is to have, I would have appreciated all input from those who have undergone the same, or similar procedure. As in saying, yeah I did it, no biggie, or I had this done, and I did have some burning, etc... the same type of advice we receive over on the PALS forum concerning PEG placement; varying experiences, shared collectively.

I too, read, and re-read, and could find nowhere that Andy was advised to conceal medical history.

Andy, I hope it goes well for you, and also hope you get some answers soon. LimboLand is not a happy place to find yourself, especially not for the extended tour. Good luck!
 
I think that the cortisol that rushes through the body when emotions are high have much more effect on the muscles than we realize"

so so true nd,for me its exactly the same.........any emotional upset has an adverse effect on my pls symptoms.

rose,you are like a lady knight in shining armour coming out of the mist to save the day lol.
i wish i had the cognitive ability to write a post like you........sigh.
i have missed you by the way.
 
I really do believe that much of medicine varies from state to state and country and country. Even from hospital to hospital. That can cause some discord because some are taught one way while others are taught something totally different.

I'm amazed they didn't remove the polyps--as they can turn to cancer. Heck, they're up there--why not just take 'em out?

Northern Dancer and Olly--I'm in 100% agreement with you that words can and do hurt and affect our physical selves.. I'm one that tends to get my feelings hurt quite easily, which is why I apologize if I'd hurt yours.

I was just as amazed at Aly's doc not using anesthetic and by the ones that had the procedure with no sedation at all an Olly's assertion that no sedation was needed because it wasn't painful (Again--my personal experience--it hurt, LOL)

I don't think they're a problem with differing opinions being posted. And, I think it's easy to mistake tones in typed words. We all base answers on our own personal experience or on our research--which leaves some questionls like Andy's incinting various opinions.

My general heath is definitely affected by stres Andy, did they remove the polyps? If not, WHY? I'm a little confused.

I think I must have misread something in Northern Dancer's post, too. I misunderstood and thought she was saying it wasn't necessary for him to disclose his POSSIBLE neuro symptoms.

Rose, Lydia and Olly, I respect all of you very much. For my part in bothering any of you, I apologize as well.. Northern Dancer, I don't always agree with you--but I do think varying opinions on things help posters as they give them more info to consider.
 
i enjoyed this thread cos there was a disagreement and a touch of discord...thats why i became dick turpin,,,,now were all nicey pies , its boring .....it was a healthy debate and never got out of hand....but wad do i know...am only a puppet........poolers.....
 
So my neuro appointment is today. I've sort of gotten used to the weak muscles under my mouth, but the strength has not returned. The only new thing I've been experiencing is a warm sensation around one of my trouble areas-- the muscle on the side of my hand under the pinky finger. I've had issues with this section of my hand in the past; it twitches all the time, undulates when I move it, and it's one of the first fingers to lose strength when I use my hand too much. This new sensation is feelings of heat in that area for a few seconds. Not intense enough to call it a burning sensation, but definitely a hot one.

I've also had more problems with muscle fatigue. I give my wife massages and back scratches, and for the first time my fingers on my right hand are just giving out. They'll be fine for a few seconds, but soon I just can't move them anymore and I have to switch to my left hand.

Other than that, I'm the same. I'll be interested to hear what this doc has to say.
 
I wish I had your problems.
 
The problem is a progressive neuro-muscular issue that causes weakness and atrophy; what I listed above is just a few of the newer symptoms. Though I'm sure any problem seems relatively trivial compared to an ALS diagnosis.
 
The problem is a progressive neuro-muscular issue that causes weakness and atrophy; what I listed above is just a few of the newer symptoms. Though I'm sure any problem seems relatively trivial compared to an ALS diagnosis.

progressive neuro-muscular issue... is this the diagnosis from your neuros?
 
That's what my doctor called it, but I wouldn't call it a diagnosis since "issue" is so ambiguous.

The neuro yesterday was not super helpful, though she did order an EMG and said a muscle biopsy might be in order afterwards.

She sort of confirmed everything that I already knew, that my symptoms aren't fully consistent or easily categorized. She said my muscles were behaving more in lines with a myopathy, but the fasciculations were more suggestive of a motor neuron problem. But I also don't look/function like someone who has had a motor neuron disease for several years.
 
But weren't your EMGs all normal? Kind of confused here....
 
I had my first in 2008, and they noted fasciculations but nothing else. The second I had in 2009, and it showed a slight problem in my left arm that I still don't completely understand, but no denervation, reinnervation or anything like that. It was considered "borderline normal."

She thinks it's worth doing another more than two years later to see if anything has changed.
 
wow i hope everything is ok and the emg is still normal i sure hate when neuros arent helpful, they just are blank.. really i guess bc they just dont know i had a muscle biopsy done last week, she told me sometimes its so early with symtoms starting off the test are just not sensitive to pick anything up yet, i read this on a site called the Awaji criteria something new that fascilitions can be used now to detect als without giveing false positve testing. you should give it a read very interesing.
 
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